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Susannah Fox

I help people navigate health and technology.

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HIV/AIDS

Wow! How? In-your-face Expertise

September 5, 2024 By Susannah Fox 2 Comments

Wow! How? Health

This post is part of my LinkedIn series: Wow! How? Health. I welcome comments on either platform. Thirty-three years ago today, on September 5, 1991, activists unfurled a giant, inflatable condom over a U.S. Senator’s house. Don’t believe me? Watch a 30-second news clip or a 5-minute documentary about the action. It was a splashy way […]

Filed Under: Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: ACT-UP, chronic pain, cluster headache, HIV/AIDS, Joanna Kempner, Long Covid, National Breast Cancer Coalition, Peter Staley, psychedelics, Steven Epstein, TAG, Wow! How? Health

Break my heart, make me change

August 1, 2014 By Susannah Fox 19 Comments

Arrows connect Give and Take; a bracket shows that Care encompasses both.

Take a deep breath and then look at this data about HIV in the U.S.: I have seen these numbers before, but never laid out so clearly and so beautifully. Thank you, Jeff Guo of the Washington Post, for breaking my heart. Thank you, because I think we all need our hearts broken anew from […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: #whatifhc, AIDS.gov, Bedsider, Black Lives Matter, HIV/AIDS, Kicesie Drew, peer-to-peer healthcare, Pew Research Center, Vic Strecher

Mobile, social, health, care

November 15, 2013 By Susannah Fox 33 Comments

Two people holding hands at the mouth of a tunnel. Uploaded by Adam Foster on flickr

A clinical trial in Kenya confirmed that human kindness is the secret ingredient to health and mobile phones are an ideal delivery system. Well, that’s my interpretation. Here’s the gist: Taking your meds is essential to maintaining your health when you live with a chronic condition. People know this, but they need help doing it. […]

Filed Under: peer-to-peer health care, positive patterns, trends & principles Tagged With: diabetes, epilepsy, HIV/AIDS, Kenya, mhealth summit, mobile, patientslikeme, peer-to-peer healthcare, Project HealthDesign, QuitNet, smoking cessation, SMS

One voice, many inflections: HIV clinical trial communications

May 10, 2013 By Susannah Fox 14 Comments

Demographics of Twitter, Facebook, Pinterest, Instagram, Tumblr

I’m re-sexifying the top of this post since it’s so long and I want people to get these key take-aways (read on for details on each one): Expect clinical trial participants to share news with their networks. Plan accordingly. Make your information attractive and share-able where people already are, on Facebook, Tumblr, Pinterest, etc. Find […]

Filed Under: participatory research, research issues, trends & principles Tagged With: AIDS.gov, Clinical Trials, HIV/AIDS, participatory research

Public Q&A: How should a youth-focused sexual health clinic incorporate social media and SMS into their work?

May 6, 2013 By Susannah Fox 11 Comments

Continuing my series of public Q&A sessions, I’ll share the following: We are working on an innovation concept paper to a local foundation and would like to explore how to better use social media and SMS at youth-focused sexual health clinic. We need to be able clearly articulate the benefits of social media and SMS […]

Filed Under: demographics, public Q&A, social media, trends & principles Tagged With: HIV/AIDS, Pew Internet, Pew Research Center, sexual health, SMS, teens

“I was born too soon” – my grandmother, upon seeing the Web for the first time

July 24, 2012 By Susannah Fox Leave a Comment

Internet penetration in the US was at 14% in 1995

The 19th International AIDS Conference, held this week in Washington, DC, included a session entitled, “The State of New Media and HIV,” hosted by AIDS.gov. My role on the panel was a familiar one – to present the Pew Internet Project’s latest research about mobile, social technologies and their impact on health and health care. […]

Filed Under: internet geology, social media, trends & principles Tagged With: AIDS.gov, family, HIV/AIDS, Pew Internet, Rosalie Yerkes Figge

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