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Susannah Fox

I help people navigate health and technology.

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trends & principles

Access to data = access to power

October 19, 2017 By Susannah Fox 17 Comments

Black Lives Matter sign

Data about your health and that of your community can empower you to make — or demand — changes. When there are gaps in the record or the data don’t exist, participatory data collection empowers people to contribute to the public conversation. Access to data is access to power. On November 17-19, 2017, Data for […]

Filed Under: health data, policy issues, trends & principles Tagged With: Adverse Childhood Experience, asthma, Black Lives Matter, Blue Button, FHIR, flip teaching, Health Data, health disparities

Aging, housing, health

September 12, 2017 By Susannah Fox 2 Comments

Early 20th century typewriter keys

Brandeis University hosted a one-day symposium on aging, housing, health, technology, and other issues. Thanks to the people who captured these insights!

Filed Under: demographics, policy issues, trends & principles Tagged With: Alan Kay, Alexandre Kalache, Atlas of Caregiving, Brandeis University, caregivers, Danny Sands, Leslie Kernisan, Muriel Gillick, Pamela Ressler, Pippa Shulman, Rosalie Yerkes Figge, Ruth Finkelstein

The online health revolution (it’s not too late to jump in)

April 11, 2017 By Susannah Fox 4 Comments

Thanks to Joyce Lee, MD, for resurfacing this talk on Twitter today! In watching it again, I’m struck by how the data needs to be updated, but the insights don’t. Clinicians have not yet missed their chance to contribute to the online health revolution (nearly 4 years later)! The tools are going to change, but what […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: Clinicians, Pew Internet

Flashback to the Future

June 30, 2015 By Susannah Fox 3 Comments

One year ago this week I was in Sweden to deliver a talk at Almedalen, a festival of ideas held on the island of Gotland. This year, my community colleague John Nosta brought the latest in American ingenuity to the same event, telling the crowd that digital health is not a far-off promise, but instead […]

Filed Under: key people, trends & principles Tagged With: Almedalen, John Nosta, Sweden

The Power of Connection

June 25, 2015 By Susannah Fox Leave a Comment

Portraits of past HHS secretaries above Post-its

Technology enables the mission of U.S. Department of Health & Human Services (HHS). It widens access to information and tools and pushes power out to all parts of the network, from our colleagues in the federal workforce to our fellow citizens. At HHS, we seek to create a learning system that recognizes the potential of […]

Filed Under: peer-to-peer health care, policy issues, positive patterns, reforming hc, trends & principles Tagged With: Fda, Health Datapalooza, Hhs, iTriage, maker movement, patientslikeme

Public Q&A: Online patient communities

April 29, 2015 By Susannah Fox 1 Comment

A community colleague recently asked me where he might find the latest numbers on the percentage of U.S. adults who participate in online patient communities. In the spirit of “public Q&A” I’d like to share my answer and ask people to add tips about other resources in the comments. Up until July 2014, I led […]

Filed Under: patient networks, peer-to-peer health care, public Q&A, trends & principles Tagged With: Pew Internet, Pew Research Center

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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