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Susannah Fox

I help people navigate health and technology.

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trends & principles

Senator Ted Kennedy was an e-patient–Susannah Fox

August 27, 2009 By Susannah Fox 2 Comments

CNN’s Elizabeth Cohen makes a compelling case in her column today: How to get Kennedy-esque health care on your budget. Anyone with internet access can gather the information they need to make better health decisions, as e-Patient Dave and Karen Parles did, and refuse to take “no” for an answer, as Sen. Kennedy did.

Filed Under: key people, news & gossip, patient networks, trends & principles Tagged With: Anyone With Internet Access, Better Health, Budget, Cnn, Elizabeth Cohen, Esque, health care, Health Decisions, Senator Kennedy, Senator Ted Kennedy, Ted Kennedy, white paper

Participatory Medicine at PdF09: Can we get a do-over?

July 8, 2009 By Susannah Fox 12 Comments

Detail of a painting by Regina Holliday shows a hand holding a smartphone with the PatientsLikeMe symbol

The poli-tech tribe gathered in New York last week for the Personal Democracy Forum and, as Craig Newmark put it, welcomed “our new nerd overlords.” Esther Dyson, Jamie Heywood, Rep. Jerry Nadler (D-NY), and I were asked to take on a breakout panel entitled, “From Participatory Politics to Participatory Medicine: The Coming Revolution in Health […]

Filed Under: reforming hc, trends & principles Tagged With: Chris Schroeder, Craig Newmark, Disaggregation, Esther Dyson, Health Care Policy, Health Care Reform, Health Data Rights, Healthcentral, Jamie Heywood, Jerry Nadler, Openness, participatory medicine, Patient Data, patientslikeme, Personal Democracy Forum, pew internet project, susannah fox, Ted Eytan, Transparency

The Social Life of Health Information–Susannah Fox

June 10, 2009 By Susannah Fox 10 Comments

The Pew Internet/California HealthCare Foundation report, The Social Life of Health Information, is packed with new findings from a survey of 2,253 adults, including 502 cell-phone interviews, conducted in either English or Spanish. We spent a bundle of money on making this a random sample of the U.S. population, but guess who got a call […]

Filed Under: demographics, trends & principles Tagged With: California Healthcare, california healthcare foundation, Cheat Sheet, Comfort Food, E-Patient Dave, Foundation Report, Hat Tip, Health Info, health information, Healthcare Report, Information Gathering, information therapy, Interview In The Mix, Interviewer, John Seely Brown, Medical Issues, Mobile Internet, Paul Duguid, Pew Internet, Phone Interviews, Random Sample, Survey Questions, Tom Ferguson

Mobile could be a game-changer – but only for those who get in the game.–Susannah Fox

April 23, 2009 By Susannah Fox 10 Comments

Original title: Health 2.0 meets Ix: Susannah Fox’s presentation Here are my prepared remarks for the “Navigating the New Health Care Delivery System” segment at the Health 2.0 meets Ix conference (with the lines I added to respond to other themes brought out during the conference in bold) “Is Health IT the answer? Only if […]

Filed Under: trends & principles Tagged With: california healthcare foundation, health 2.0, information therapy, mobile, participatory medicine, pew internet project

Mobile, social technology and the impact on health care–Susannah Fox

March 30, 2009 By Susannah Fox 1 Comment

Fard Johnmar interviewed me about internet adoption, the use of social technologies among minority groups, and my hope that e-patients’ “passion, knowledge, and ingenuity is brought forward no matter what else is planned for health care reform.”

Filed Under: demographics, news & gossip, trends & principles Tagged With: 1940, demographics, Displays, Fard, Health Care Reform, Information Revolution, Ingenuity, Internet Adoption, Knowledge, Minority Groups, Mobile Access, Mobile Technology, Mobility Group, Next Wave, Passion, pew internet project, Social Groups, Social Technology, susannah fox

Twitter, Facebook, and e-patients–Susannah Fox

February 13, 2009 By Susannah Fox 10 Comments

Here is a key line from the Pew Internet Project’s report on Twitter and status updating: Twitter users engage with news and own technology at the same rates as other internet users, but the ways in which they use the technology—to communicate, gather and share information—reveals their affinity for mobile, untethered and social opportunities for […]

Filed Under: trends & principles Tagged With: Facebook, Twitter

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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