• Skip to primary navigation
  • Skip to main content
  • Skip to footer

Susannah Fox

I help people navigate health and technology.

  • Home
  • Rebel Health
  • Blog
    • greatest hits
    • health data
    • peer-to-peer health care
    • public Q&A
  • About me
    • Bio
    • Now
    • Curriculum vitae
  • Events

trends & principles

Rare Disease in the U.S. 2025

February 25, 2025 By Susannah Fox Leave a Comment

Two zebras

Rare disease communities welcomed me as a researcher, inspired me to highlight their ingenuity in my book, Rebel Health, and now I am honored to share results from the first probability-based national survey to measure the rare disease population. I partnered with my former Pew Research colleague Kristen Purcell, now at SSRS, to write the […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: ARCHANGELS, artificial intelligence, ChatGPT, Gemini, peer-to-peer healthcare, Pew Internet, Pew Research Center, Rare Disease, Rebel Health, SSRS, telehealth

Rebel Health

June 2, 2023 By Susannah Fox 20 Comments

Strawberries, rhubarb, and a glass pie dish

Longtime readers know I’ve spent the last two years writing a book about peer-to-peer health care and the incredible work being done by patients, survivors, and caregivers. (Even longer-term colleagues and friends know I’ve had this project on simmer since I left Pew Research, but I got happily sidetracked a couple of times.) I am […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: MIT Press, Rebel Health

Caregiving is not a “career break”

April 13, 2022 By Susannah Fox 37 Comments

Red leaves with water droplets

LinkedIn recently announced a new feature: the “career break.” Users can choose from 13 different types of time away from paid work, such as bereavement, career transition, caregiving, full-time parenting, a gap year, or travel.  It is a big step forward. But I want more. I want caregivers to be recognized as essential members of a health […]

Filed Under: positive patterns, trends & principles Tagged With: Alexandra Drane, ARCHANGELS, caregivers, Jeff Weiner, LinkedIn, Sarah Stephens Winnay, Tim O'Reilly

What can we do by Tuesday?

October 20, 2021 By Susannah Fox 3 Comments

Close up picture of a dandelion

If you have spent time learning about health care improvement, you may have heard someone ask, “What can we do by Tuesday?” It’s an urgent question that asks you to immediately apply an abstract principle to your daily practice. I had heard it repeated many times over the years, without attribution, and I was curious […]

Filed Under: key people, trends & principles Tagged With: Don Berwick, Institute for Healthcare Improvement, Kedar Mate, Mike Evans

LGBTQ+ youth are reaching out for help

March 24, 2021 By Susannah Fox 1 Comment

98% of LGBTQ+ youth have used digital tools for health purposes

In partnership with Vicky Rideout and I, Common Sense Media created fact sheets about multiple groups included in our national study (Latinx, Black, female, LGBTQ+ youth, to name a few) and I thought I’d share each slice of data in a series of posts. The complete survey findings, methodology, quotes from participants, fact sheets, and questionnaire […]

Filed Under: demographics, research issues, social media, trends & principles Tagged With: california healthcare foundation, Common Sense Media, COVID19, HopeLab Foundation, LGBTQ, mental health, Vicky Rideout

Depression, social media use, and digital health

March 22, 2021 By Susannah Fox 9 Comments

Half of those with moderate to severe symptoms of depression have looked online for people with similar health concerns and 75% have used health apps

In partnership with Vicky Rideout and I, Common Sense Media created fact sheets based on our national study and I thought I’d share slices of data in a series of posts. The complete survey findings, methodology, quotes from participants, fact sheets, and questionnaire are available here. Here’s the 10-second summary for this featured group,  young people […]

Filed Under: demographics, research issues, social media, trends & principles Tagged With: california healthcare foundation, Common Sense Media, COVID19, HopeLab Foundation, mental health, Vicky Rideout

  • Go to page 1
  • Go to page 2
  • Go to page 3
  • Interim pages omitted …
  • Go to page 19
  • Go to Next Page »

Footer

Explore

Don't miss a post

Enter your email address and receive notifications of new posts by email.

Topics

  • Seekers
  • Networkers
  • Solvers
  • Champions
  • Health Data
  • Peer-to-Peer Health Care
  • Public Q&A

Recent Comments

  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
  • barbara figge fox on Jean Nidetch, Rebel Health leader: “Jean Neditch helped so many of us! She changed the landscape for weight reduction by leveraging peer support.” May 9, 08:11
  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33

Copyright Susannah Fox © 2025 · WordPress · Log in