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Susannah Fox

I help people navigate health and technology.

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Teens and young adults:
In their own words

August 2, 2018 By Susannah Fox Leave a Comment

I like to look at what my friends are doing. It makes me happy to see them being happy. Takes my mind off my troubles and stress.

The Hopelab/Well Being Trust report is based on a nationally-representative online survey which we designed to have as many open-end questions as we could squeeze into it. We were overwhelmed (in a good way) with the responses. Hundreds of teens and young adults shared vignettes about how they are managing their health, both physical and emotional, using mobile […]

Filed Under: social media, trends & principles Tagged With: social media, teens

Digital health practices among teens and young adults in the U.S.

July 31, 2018 By Susannah Fox 13 Comments

A young woman holds her phone up so it blocks her face. Background is a field of yellow flowers.

I am thrilled to share new, national survey data on the digital health landscape. Thanks to funding and guidance from Hopelab and the Well Being Trust, Vicky Rideout and I measured how teens and young adults (14- to 22-year-olds) pursue health and well-being using the tools at their disposal — apps, peer advice, online communications […]

Filed Under: demographics, peer-to-peer health care, social media, trends & principles Tagged With: HopeLab Foundation, mental health, Peer To Peer, peer-to-peer healthcare, teens, Vicky Rideout, Well Being Trust

Clinical trials jump on the Cluetrain

June 22, 2018 By Susannah Fox 6 Comments

Man rushes toward a modern train

When the organizers of a National Cancer Institute workshop on social media and clinical trials invited me to speak, they said: We have an ethical obligation to understand social media. Social media is not just trendy. It’s a tool, an opportunity to act in an ethical way, not only to increase recruitment but to help […]

Filed Under: research issues, social media, trends & principles Tagged With: Cluetrain Manifesto, national cancer institute, Pew Internet, Pew Research Center, social media

Medicine’s cultural “caution tape”

November 6, 2017 By Susannah Fox Leave a Comment

Yellow caution tape against a black background

I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Jack Penner, in response to “His doctors were stumped. Then he took over” (2017): In terms of how can we empower patient to become active participants, one thing that comes to mind is lowering […]

Filed Under: featured commenters, net-friendly docs, patient networks, social media Tagged With: participatory medicine, Patient Community, peer-to-peer healthcare

Parkinson’s For One Day

June 14, 2015 By Susannah Fox 10 Comments

Pill bottles

My new job is wonderfully immersive. I leave home early, come back late, and, in between, spend hours talking with people about the future of health, health care, and technology (broadly defined). The HHS IDEA Lab blog will be my outlet for sharing ideas related to the work I do there. This site will serve, as it […]

Filed Under: key people, others' e-patient stories, social media Tagged With: empathy, Parkinson's, Smart Patients

Snow day

January 27, 2015 By Susannah Fox 12 Comments

Snow day in New York City, captured by Anna Dorfman on Instagram

I’m taking advantage of the “snow day” to share what I have been reading, watching, listening to, thinking about — and I invite you to join me, even if you don’t have a snow day. (Truth be told, DC only got a couple of inches and a 2-hour delay, but humor me.) Legitimacy through public service: The […]

Filed Under: beauty and wonder, positive patterns, social media Tagged With: Anne Porter, Elizabeth Blackwell, Garrison Keillor, Gertrude Elion, Hank Green, Instagram, may I suggest, ulcerative colitis

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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