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Susannah Fox

I help people navigate health and technology.

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empathy

Parkinson’s For One Day

June 14, 2015 By Susannah Fox 9 Comments

Pill bottles

My new job is wonderfully immersive. I leave home early, come back late, and, in between, spend hours talking with people about the future of health, health care, and technology (broadly defined). The HHS IDEA Lab blog will be my outlet for sharing ideas related to the work I do there. This site will serve, as it […]

Filed Under: key people, others' e-patient stories, social media Tagged With: empathy, Parkinson's, Smart Patients

Cystic Fibrosis For One Day

March 29, 2015 By Susannah Fox Leave a Comment

Boy wearing nebulizer mask and his mom

I shadowed a mom and her 5-year-old with CF from afar for 24 hours. It taught me more than I could have imagined about living with a life-shortening disease — and about myself. This “empathy exercise” was organized by Smart Patients, an online community where patients and caregivers learn from each other.

Filed Under: e-patient stories, key people Tagged With: cystic fibrosis, empathy, Smart Patients

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popular posts

  • Hack needed: Tiny pills, trembling hands
  • Sunflowers turn to each other for help
  • Hypothesis generator
  • The new environment for health care decisions

Recent Comments

  • Dave deBronkart on Hack needed: Tiny pills, trembling hands: “A later article on Choi’s project: https://www.cbc.ca/radio/asithappens/as-it-happens-the-monday-edition-1.5868846/how-tiktok-users-designed-a-better-pill-bottle-for-people-with-parkinson-s-1.5868848” Jan 17, 19:04
  • Susannah Fox on Hack needed: Tiny pills, trembling hands: “Update: Peer-to-peer connections, open-source design, and new manufacturing capabilities may have yielded a solution. Here’s the story: TikTok Users Rally…” Jan 11, 06:39
  • Susannah Fox on Lessons learned about hospice care: “Erica, thank you for fighting for your grandmother and I’m sorry for your loss. So many themes and vignettes in…” Jan 4, 08:25

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