I shadowed a mom and her 5-year-old with CF from afar for 24 hours.
It taught me more than I could have imagined about living with a life-shortening disease — and about myself.
This “empathy exercise” was organized by Smart Patients, an online community where patients and caregivers learn from each other.
My post on Medium displays a sample of the text messages we exchanged (shared with Erin Moore’s permission). Here’s just two of the 20 included in this, the first of what I hope is a series of posts:
It was a laborious process to capture each segment of our exchange and I’m afraid to put all 80 images on this site for fear of crashing it, so please check it out on Medium and let me know what you think.
e-Patient Dave on Why should anyone care about health data interoperability?: “Here at the HL7 working group meeting, I've met a lot of different people who've come here from varied backgrounds,…” Sep 18, 21:41
Leave a Reply