Cystic Fibrosis For One Day

I shadowed a mom and her 5-year-old with CF from afar for 24 hours.

It taught me more than I could have imagined about living with a life-shortening disease — and about myself.

This “empathy exercise” was organized by Smart Patients, an online community where patients and caregivers learn from each other.

My post on Medium displays a sample of the text messages we exchanged (shared with Erin Moore’s permission). Here’s just two of the 20 included in this, the first of what I hope is a series of posts:

It was a laborious process to capture each segment of our exchange and I’m afraid to put all 80 images on this site for fear of crashing it, so please check it out on Medium and let me know what you think.

Susannah Fox on Hack needed: Tiny pills, trembling hands: “I shared your question on Twitter and received a few ideas: 1) Vacuum nozzle with nylon over the end 2)…” Jan 30, 09:28
Dave deBronkart on Hack needed: Tiny pills, trembling hands: “Nancy, my experience in such situations is that prevention is the only answer: handle your pill dispensing in some kind…” Jan 27, 20:42
Nancy on Hack needed: Tiny pills, trembling hands: “What can an Elderly person do to pick up spilled pills on the floor at home. Is there such a…” Jan 27, 01:10