I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Jack Penner, in response to “His doctors were stumped. Then he took over” (2017): In terms of how can we empower patient to become active participants, one thing that comes to mind is lowering […]
Why people participate in clinical trials: altruism and access
I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Rahlyn Gossen, in response to Peer-to-peer healthcare: Crazy, crazy, crazy, obvious (2011): By far the biggest hurdle to clinical trials recruitment is awareness. The public is generally not aware and doctors are not informing […]
Access to results that matter
The Patient-Centered Outcomes Research Institute (PCORI) will kick off their annual meeting on Tuesday, October 31. I will moderate the first panel, “Access to Results That Matter,” and, as I like to do, I’m starting the conversation early online. Here’s the session description: Traditional health research often does not provide the answers to patients’ questions […]
How health systems are like newspapers
I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Dave Chase, in response to Recognizing the value of data (2014): As a confessed congenital optimist, I’ll give my optimistic view of how positive developments are little-noticed, as they were with epic shifts that […]
Access to data = access to power
Data about your health and that of your community can empower you to make — or demand — changes. When there are gaps in the record or the data don’t exist, participatory data collection empowers people to contribute to the public conversation. Access to data is access to power. On November 17-19, 2017, Data for […]
Under the right conditions, people will choose the path of information altruism
I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. This comment was posted in 2011 and I’m featuring it now because it is an example of how we, as a health data community, have been — and need to continue — discussing a power […]
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