The following is a repost from 2012, one of the first examples of what would become my “featured commenters” series: I want to continue the Engage with Grace blog rally by highlighting my favorite comment thread about it, from a 2010 post on e-patients.net. For me, this is what blogging is about — providing a […]
Thread by thread
I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Julia M. Brennan, in response to Textiles are technology (2015): The intersection of woven dyed hand made textiles and fast evolving technologies (high tech fabric production as well as IT communications) today is a […]
Re-imagining care for hospitalized kids
On Nov. 1-2, 2017, Hope for Henry convened a diverse group of parents, kids, clinicians, designers, educators, and entrepreneurs to reimagine care for hospitalized kids. I’ll disclose that I am an advisor to Hope for Henry and helped organize the event, but I hope you’ll believe me when I say that it was, objectively, a […]
Medicine’s cultural “caution tape”
I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Jack Penner, in response to “His doctors were stumped. Then he took over” (2017): In terms of how can we empower patient to become active participants, one thing that comes to mind is lowering […]
Why people participate in clinical trials: altruism and access
I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Rahlyn Gossen, in response to Peer-to-peer healthcare: Crazy, crazy, crazy, obvious (2011): By far the biggest hurdle to clinical trials recruitment is awareness. The public is generally not aware and doctors are not informing […]
Access to results that matter
The Patient-Centered Outcomes Research Institute (PCORI) will kick off their annual meeting on Tuesday, October 31. I will moderate the first panel, “Access to Results That Matter,” and, as I like to do, I’m starting the conversation early online. Here’s the session description: Traditional health research often does not provide the answers to patients’ questions […]
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