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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Celebrating #BCSM as a peer health innovation

August 20, 2021 By Susannah Fox 6 Comments

A man and woman walking on a trail

Cancer patients were among my first peer health innovation teachers and remain, years later, among my favorite communities to follow. I keep an eye out for hashtags like #gyncsm (gynecological cancer social media), #bcsm (breast cancer social media), and #lcsm (lung cancer social media) on Twitter. I listen to podcasts like The Cancer Mavericks (and […]

Filed Under: e-patient stories, Networkers, patient networks, peer-to-peer health care, pts as teachers Tagged With: #bcsm, #gyncsm, #hcsm, #lcsm, Alexandra Drane, Alicia Stales, breast cancer, Dana Lewis, Deanna Attai, Elizabeth O'Riordan, Jodi Sperber, Jody Schoger, Leslie Schover, Matthew Zachary, peer health innovation, Trisha Greenhalgh, Unmentionables

Consumer-strength tools,
industrial-strength innovation

August 10, 2021 By Susannah Fox Leave a Comment

Group of people in front of huge screen of numbers

On August 31, I’ll be part of the 2021 Federal Wearables Summit. This post is my attempt to “flip” the event by sharing what I intend to say. Please let me know what you think in the comments below. In 1986, Eric von Hippel of MIT identified “lead users” as people who identify and solve […]

Filed Under: Champions, health data, Networkers, patient networks, peer-to-peer health care, policy issues, Solvers Tagged With: Body Politic, Cajun Navy, Eric von Hippel, Fiona Lowenstein, LongCovid, MIT Press, Patient-Led Research Collaborative, Rock Health, self-tracking, wearables

Peer health playbooks

August 6, 2021 By Susannah Fox 18 Comments

Sunflowers with a bee

I’m collecting examples of peer health playbooks: the how-to guides that patients and caregivers write so that people following their path won’t stumble into the same pitfalls. If you know of one that is not listed below, please tell me about it in the comments. I AM ALS put together a step-by-step playbook of how […]

Filed Under: peer-to-peer health care Tagged With: ALS, Brain Tumor, Caregiver Action Network, Carmen Bombeke, Dana Lewis, food allergy, Genetic Alliance, I AM ALS, IBD, ImproveCareNow, Katherine Onk, Lianne Mandelbaum, Meghan Marsac, Melissa Hogan, mental health

Doing the work

July 9, 2021 By Susannah Fox 19 Comments

Close-up photo of a green leaf

I am thrilled to share that I am writing a book for MIT Press about the alchemy, grit, and soul of the health innovation pipeline that is powered by people connecting with each other to solve problems. Here’s the back story, which illustrates one of my core principles: Do the work that needs to get […]

Filed Under: health data, patient networks, peer-to-peer health care Tagged With: Bob Prior, Body Politic, Emily Sirotich, Gary Wolf, Gina Assaf, Hannah Davis, Helen Burstin, Jennifer Brea, Kate Lorig, LongCovid, MIT Press, Tanya Basu

Inventing the future

June 2, 2021 By Susannah Fox 8 Comments

Close up picture of a dandelion

If you want to meet the future faster, go out to the edges of your field of vision. Find out what pioneers and rebels are doing and learn from them. Sometimes that means taking a virtual helicopter ride up to the zenith of tech development, as I did recently, watching Dario Gil, SVP and Director […]

Filed Under: Champions, health data, patient networks, peer-to-peer health care, policy issues, Solvers Tagged With: #wearenotwaiting, Amy Tenderich, Ben Eloff, Dario Gil, diabetes, diabetesmine, Hhs, IBM, Invent Health, kidney disease, KidneyX, Maja Vukovich

Data-driven support for vulnerable populations

April 8, 2021 By Susannah Fox 6 Comments

Safety net against a blue sky

How might we reduce the stigma associated mental health, which underpins global health and trauma recovery? How might we use technology to personalize services to support people, whether they are veterans, foster-care kids, returning citizens, or an elder living alone? These are two of the questions that I recently discussed with Paul Dommel, IBM’s Global […]

Filed Under: health data Tagged With: IBM, mental health, safety net, veterans

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Recent Comments

  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07
  • Jill H. on Case study: Trevor’s disease: “Hello Carrie, I am curious how your son is doing after the surgery? Were you able to fix the locked…” May 28, 19:07

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