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Susannah Fox

I help people navigate health and technology.

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Conference organizers:
Steal these ideas!

March 5, 2018 By Susannah Fox 19 Comments

Conference stage lit up in violet with a white X hanging over the panelists

On February 21, Larry Chu, MD, announced that Stanford Medicine X would take a hiatus. He shared the following story: Eight years ago, I posted a tweet announcing my intention to launch my first conference at Stanford. I received a variety of responses, but the one that remains the most poignant is the one I received from […]

Filed Under: beauty and wonder, e-patient stories, positive patterns Tagged With: #medxsm, Abby Norman, Bill Simpson, Britt Moody, Charlie Blotner, conferences, Erin Moore, Geri Lynn Baumblatt, Hugo Campos, Julie Flygare, Larry Chu, Sean Ahrens, Stanford Medicine X, Terry Marlin

The silver lining of jury duty

February 12, 2018 By Susannah Fox 3 Comments

US Constitution by Jonathan Thorne on Flickr

Imagine taking a 7-hour flight on a low-budget airline every day for 5 weeks, sitting elbow to elbow with the same 22 people, listening to fragments of some of the most violent, upsetting stories you have ever heard. That was my experience of grand jury duty in Washington, DC. I tried to sit quietly and endure. […]

Filed Under: positive patterns Tagged With: civic duty, Peer To Peer, Quality Improvement, Washington DC

Letter to shareholders

January 29, 2018 By Susannah Fox 28 Comments

Susannah Fox in the audience at a public event at the U.S. Dept of Health and Human Services

For tax purposes, I recently added up all the various sources of income I’d received in 2017. It was a real hodge-podge of a year since I left my appointment at the U.S. Department of Health and Human Services (HHS) and started working on my own projects again. This exercise brought home the lesson that […]

Filed Under: key people, positive patterns Tagged With: Cambia Health Solutions, caregivers, family, Hhs, Hope for Henry, HopeLab Foundation, Laurie Strongin, Margaret Laws, Mark Ganz, peer-to-peer healthcare, Warren Buffett

A good death

January 19, 2018 By Susannah Fox 28 Comments

Black and white image of two hands, clasped. One person is wearing a hospital ID bracelet.

You might think, looking at the open tabs on my browser, that I’ve got death on my mind. And you would be right. My father passed away in December from melanoma. The end was about as peaceful as we could have hoped for, but it was still hard to watch. I spent most of what […]

Filed Under: end of life, peer-to-peer health care Tagged With: cancer, end of life, family, Family Caregivers

Unrest

January 8, 2018 By Susannah Fox 1 Comment

Jennifer Brea, director of the film Unrest, lies in bed with EEG leads on her head

The film “Unrest” will debut on Independent Lens this week (check your local listings — in the DC area it will air on Jan. 12 at 10:30pm on WETA). I couldn’t wait and bought my own digital copy on Amazon. Let me just say: It’s no surprise that it’s on the short list for an Academy […]

Filed Under: e-patient stories, key people, patient networks, peer-to-peer health care, policy issues Tagged With: chronic fatigue syndrome, Jennifer Brea, Marfan syndrome, ME/CFS, myalgic encephalomyelitis, peer-to-peer healthcare, Rare Disease, rare diseases

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