The biomedical research model has a blind spot. People living with a condition or disease are traditionally seen as passive sources of data, not active participants in the research. We as a society miss out on promising avenues of inquiry. It’s time to widen our lens. On August 12, I’ll moderate a discussion about how […]
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How peer-to-peer health advice can help people take their meds on time (and so much more)
(Yes, it’s the third post in 5 days from me, but when you’ve got cool stuff to share, why wait?) Matthew Zachary‘s podcast, Out of Patients, is one of my favorites because he brings his whole self to health care discussions, as you’ll hear in our conversation. It was a pleasure to unpack my latest […]
Accelerating real-time electronic data capture for COVID-19 tracking and response
The Council of Medical Specialty Societies and the Association of Academic Medical Colleges, with support from the Gordon & Betty Moore Foundation, are hosting a webinar series focused on COVID-19 patient registries. They are being offered free and open to the public. The second in the series took place on July 8 and addressed the […]
Connecting during COVID-19
My friend and community colleague Margie Morris wrote a wonderful article for a clinical neuroscience journal that, with her permission, I am excerpting for a series of posts. My goal is to spark discussion about each of her insights. She writes: To meaningfully connect, we will need to do more than show up online. Now, […]
Signs of the times: Black Lives Matter
Sonja Sharp, an LA Times reporter, interviewed Deaf people about how they are creating and sharing new signs for this moment of reckoning and recognition. I cued up the story’s video (below) to the point at which Rorri Burton, a Black American Sign Language (ASL) interpreter, shares her perspective: The sign for “your knee on […]
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