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Susannah Fox

I help people navigate health and technology.

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Inviting Controversy: David Eddy at ICSI–Susannah Fox

December 1, 2009 By Susannah Fox 1 Comment

David Eddy did nothing to reassure Kent Bottles about evidence-based guidelines in his recent keynote, saying essentially: “The problem is that we don’t know what we are doing” (!!)

Filed Under: found on the net Tagged With: Controversy, David Eddy, Doubts, Icsi, Keynote

Engage With Grace

November 26, 2009 By Susannah Fox Leave a Comment

Alexandra Drane and her team have a new post on The Health Care Blog about how to put this holiday to work in a new way. Here’s a snippet: Some conversations are easier than others Our original mission – to get more and more people talking about their end of life wishes – hasn’t changed. […]

Filed Under: e-pts resources Tagged With: Engage with Grace

The Pew Internet/Health FAQ

November 20, 2009 By Susannah Fox 11 Comments

A big part of my job, and one I love, is answering questions, mostly from reporters. Sometimes I have just the data or insight someone needs, often I recommend someone else. Here is a sample of frequently-asked questions and my current answers. Please add your questions and answers in the comments: What are you curious […]

Filed Under: public Q&A, trends & principles Tagged With: Anonymity, Baloney Detection Kit, British Medical Journal, Carl Sagan, Cdt, Center For Studying Health System Change, Daniel Solove, Diagnostic Aid, Family Caregivers, Google, Health Privacy Project, Jules Polonetsky, Medical Library Association, Pew Internet, Taxonomy

Participatory medicine and health data rights on NPR

November 16, 2009 By Susannah Fox 10 Comments

NPR’s Morning Edition story, “Patients Turn to Online Buddies for Help Healing,” combined research and real-life examples, participatory medicine and health data rights. Much of what I said during my interview with Joseph Shapiro is based on what I’ve written and read here on e-patients.net, so, first, thank you. I’ve already started answering questions on […]

Filed Under: general, health data Tagged With: Answering Questions, Assertions, Buddies, Case Mix, Collective Decisions, Health Care Decisions, Health Care Revolution, Health Data, health information, Health Professionals, Health Searches, Health Systems, John Horrigan, Joseph Shapiro, Medicine, Medicine And Health, Mediums, npr, Offline Sources, Pareto Principle, Partnership, Person Accounts, Pew Research Center, Real Health, Tom Ferguson, Twitter, Walks Of Life

Tell the FDA the whole story, please

November 8, 2009 By Susannah Fox 26 Comments

Exterior of the National Museum of American History in Washington, DC, with the Washington Monument in the background

I scan menus for keywords (fig, parsnips, salmon…) and it turns out I scan Twitter the same way, looking for anyone who is talking about my favorite topics (data, consumers, information quality…) So when I saw Jonathan Richman‘s tweet the other night, I couldn’t resist it: Anyone ever seen data on the overall accuracy of […]

Filed Under: policy issues Tagged With: Amia, Ammo, Ammunition, Amp, Aspx, Boundaries, Consumer Information, Fingers, health care, health information, Health Research, Health Search, Health Seekers, Health Websites, Healthypeople, Hhs, Information Quality, Information Retrieval, Internet Data, Internet Health Report, Jonathan, Jonathan Richman, Medical Advice, Medical Information, Medical Library Association, Menus, Mla, Mole, Pew Internet, Pew Research Center, Quality Game, Quality Indicators, Research Question, Respondents, Salmon, Short Answer, Social Impact Of The Internet, Thre, Three Quarters, Timeliness, Vital Decisions, Watchdog, Www Health

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