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Susannah Fox

I help people navigate health and technology.

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Pew Internet

Public Q&A: Online patient communities

April 29, 2015 By Susannah Fox 1 Comment

A community colleague recently asked me where he might find the latest numbers on the percentage of U.S. adults who participate in online patient communities. In the spirit of “public Q&A” I’d like to share my answer and ask people to add tips about other resources in the comments. Up until July 2014, I led […]

Filed Under: patient networks, peer-to-peer health care, public Q&A, trends & principles Tagged With: Pew Internet, Pew Research Center

What I’m reading, listening to, admiring…

January 10, 2015 By Susannah Fox 8 Comments

Susannah at the library

I hunkered down at the library this week, working on a couple of long-term projects. I kept one eye on Twitter, though, as I always do, and wanted to share what distracted — and inspired — me this week: Radiolab: Worth — what would you pay for another month of life? How about a year? […]

Filed Under: beauty and wonder, maternity, positive patterns, social media Tagged With: Amy Romano, Cluetrain Manifesto, cystic fibrosis, diabetes, diabetesmine, Facebook, Kerri Sparling, may I suggest, Pew Internet, Pew Research Center, Robert Wood Johnson Foundation, Wendy Sue Swanson

I’m leaving Pew Research

July 17, 2014 By Susannah Fox 84 Comments

Believe it or not, 14 years ago, the idea of using the internet for health was a novel concept. That’s when Pew Internet published its first report about the social impact of the internet on health and health care, raising eyebrows across the U.S. Our data was cited in mainstream news outlets, in JAMA, and, […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: california healthcare foundation, Pew Charitable Trusts, Pew Internet, Pew Research Center, Robert Wood Johnson Foundation, Thomas Goetz, Tom Ferguson

How did we get here? And where are we going?

July 15, 2014 By Susannah Fox 17 Comments

The Vasa, which sank on its maiden voyage in 1628

Video of my talk in Sweden is now online (skip to minute 7 unless you speak Swedish): It’s a comprehensive summary of my research so far, as well as an argument for listening to patients and caregivers as we move forward into the future. I opened with an example that was inspired by a visit […]

Filed Under: participatory research, patient networks, peer-to-peer health care, trends & principles Tagged With: C3N Project, cystic fibrosis, patientslikeme, peer-to-peer healthcare, Pew Internet, Pew Research Center, scurvy, Sweden, video

McKinsey’s “Healthcare digital future” checks out

July 12, 2014 By Susannah Fox 5 Comments

Pew Research: Caregivers and Health Care Reviews Online

Stefan Biesdorf and Florian Niedermann of McKinsey wrote an excellent essay laying out 5 myths about health care and technology. It rings true so I decided to add my own evidence to their points: McKinsey Myth 1: People don’t want to use digital services for healthcare Pew Research has found that looking for health information is consistently […]

Filed Under: demographics, hc's problem list, trends & principles Tagged With: Dave Clifford, Eric Topol, McKinsey, mobile, Pew Internet, Pew Research Center, SMARTHealthIT

Just in time someone like me

July 8, 2014 By Susannah Fox 12 Comments

Teens want just in time someone like me

In 2005, I took a call from someone who worked at Planned Parenthood. He wanted the conversation to be off the record, so I didn’t even write down his name, which is a shame because that conversation changed the direction of my career. The caller had seen media coverage of Pew Internet’s health research, probably […]

Filed Under: peer-to-peer health care Tagged With: peer-to-peer healthcare, Pew Internet, sexual health, Tom Ferguson

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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