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Susannah Fox

I help people navigate health and technology.

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Participatory Medicine at PdF09: Can we get a do-over?

July 8, 2009 By Susannah Fox 12 Comments

Detail of a painting by Regina Holliday shows a hand holding a smartphone with the PatientsLikeMe symbol

The poli-tech tribe gathered in New York last week for the Personal Democracy Forum and, as Craig Newmark put it, welcomed “our new nerd overlords.” Esther Dyson, Jamie Heywood, Rep. Jerry Nadler (D-NY), and I were asked to take on a breakout panel entitled, “From Participatory Politics to Participatory Medicine: The Coming Revolution in Health […]

Filed Under: reforming hc, trends & principles Tagged With: Chris Schroeder, Craig Newmark, Disaggregation, Esther Dyson, Health Care Policy, Health Care Reform, Health Data Rights, Healthcentral, Jamie Heywood, Jerry Nadler, Openness, participatory medicine, Patient Data, patientslikeme, Personal Democracy Forum, pew internet project, susannah fox, Ted Eytan, Transparency

Mobile could be a game-changer – but only for those who get in the game.–Susannah Fox

April 23, 2009 By Susannah Fox 10 Comments

Original title: Health 2.0 meets Ix: Susannah Fox’s presentation Here are my prepared remarks for the “Navigating the New Health Care Delivery System” segment at the Health 2.0 meets Ix conference (with the lines I added to respond to other themes brought out during the conference in bold) “Is Health IT the answer? Only if […]

Filed Under: trends & principles Tagged With: california healthcare foundation, health 2.0, information therapy, mobile, participatory medicine, pew internet project

Mobile, social technology and the impact on health care–Susannah Fox

March 30, 2009 By Susannah Fox 1 Comment

Fard Johnmar interviewed me about internet adoption, the use of social technologies among minority groups, and my hope that e-patients’ “passion, knowledge, and ingenuity is brought forward no matter what else is planned for health care reform.”

Filed Under: demographics, news & gossip, trends & principles Tagged With: 1940, demographics, Displays, Fard, Health Care Reform, Information Revolution, Ingenuity, Internet Adoption, Knowledge, Minority Groups, Mobile Access, Mobile Technology, Mobility Group, Next Wave, Passion, pew internet project, Social Groups, Social Technology, susannah fox

Crowdsourcing a Survey: Reassured? Overwhelmed? Eager? Confused?–Susannah Fox

November 5, 2008 By Susannah Fox 8 Comments

The Pew Internet Project is finalizing our fall health survey and we are now in the painful cut phase. Here’s a question I’m hoping to save in a shorter form: At any point in your last search for health information online did you feel any of the following things? At any point, did you feel…?

Filed Under: demographics Tagged With: data, pew internet project, survey

Participatory Medicine: Text of my speech at the Connected Health symposium–Susannah Fox

November 3, 2008 By Susannah Fox 3 Comments

Light bulbs in the night sky - a photo by Ted Eytan

I should have posted this when I posted my slides, but better late than never.

Filed Under: trends & principles Tagged With: connected health, health 2.0, participatory medicine, pew internet project, social media

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  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
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