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Susannah Fox

I help people navigate health and technology.

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Hope for Henry

Wow! How? Hope for Henry

April 26, 2024 By Susannah Fox Leave a Comment

Cartoons of superhero kids getting medical treatments like an EEG, Central Line Dressing Change, COVID testing, and IV Placement or Blood Draw

Imagine being a little kid and facing not only serious illness, but all the uncomfortable, scary treatments associated with hospitalization: blood draws, IV placements, and scans. Then you find out that you can earn prizes for every medical procedure you go through, thanks to an incentive program called Super Rewards for Super Kids. Kids love […]

Filed Under: Solvers Tagged With: Allen Goldberg, Hope for Henry, Laurie Strongin, Rare Disease, rare diseases, Wow! How? Health

A health & technology pioneer learns that joy, even in illness, doesn’t have an age limit

August 13, 2018 By Susannah Fox 10 Comments

Woman holds her hands in the shape of a heart

The following is a cross-post from the Atlas of Caregiving blog, which is featuring a new series of “caring conversations” with people who connect their professional experience to their caregiving experience. Susannah Fox advises companies and nonprofits on how to navigate the intersection of health and technology. She recently served as the Chief Technology Officer […]

Filed Under: e-patient stories, key people Tagged With: Atlas of Caregiving, Blue Button, caregivers, Family Caregivers, Hope for Henry, Laurie Strongin

Letter to shareholders

January 29, 2018 By Susannah Fox 28 Comments

Susannah Fox in the audience at a public event at the U.S. Dept of Health and Human Services

For tax purposes, I recently added up all the various sources of income I’d received in 2017. It was a real hodge-podge of a year since I left my appointment at the U.S. Department of Health and Human Services (HHS) and started working on my own projects again. This exercise brought home the lesson that […]

Filed Under: key people, positive patterns Tagged With: Cambia Health Solutions, caregivers, family, Hhs, Hope for Henry, HopeLab Foundation, Laurie Strongin, Margaret Laws, Mark Ganz, peer-to-peer healthcare, Warren Buffett

Re-imagining care for hospitalized kids

November 8, 2017 By Susannah Fox 9 Comments

On Nov. 1-2, 2017, Hope for Henry convened a diverse group of parents, kids, clinicians, designers, educators, and entrepreneurs to reimagine care for hospitalized kids. I’ll disclose that I am an advisor to Hope for Henry and helped organize the event, but I hope you’ll believe me when I say that it was, objectively, a […]

Filed Under: hc's problem list, key people, positive patterns, Solvers Tagged With: Allen Goldberg, Hope for Henry, Laurie Strongin, Rare Disease

Mama birds: Catherine Fairchild and Laurie Strongin

March 16, 2012 By Susannah Fox 2 Comments

On February 29, 2012, Rare Disease Day, I hosted a conversation with Catherine Fairchild and Laurie Strongin, two people who have inspired me in my research about the social impact of the internet on health. They have also inspired me personally, finding joy and reasons to laugh when I think I’d just sit down and […]

Filed Under: e-patient stories, maternity Tagged With: Genetic Disorder, Hope for Henry, Marble Road, Mccune Albright Syndrome, Rare Disease

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Recent Comments

  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
  • barbara figge fox on Jean Nidetch, Rebel Health leader: “Jean Neditch helped so many of us! She changed the landscape for weight reduction by leveraging peer support.” May 9, 08:11
  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33

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