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Susannah Fox

I help people navigate health and technology.

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Hhs

Celebrating invention and innovation

July 15, 2019 By Susannah Fox 7 Comments

Tools by Dorli Photography on Flickr

We are going to need all the ingenuity and help we can get to untangle and improve health and health care. Everyone should have access to the data, information, and tools they need to solve problems. That includes access to each other – peer to peer. My hope is for people to look at a […]

Filed Under: positive patterns Tagged With: #InventHealth, Fda, George Hacks, Hhs, Invent Health, Lemelson Center, maker movement, prize competitions, veterans

Trust gap: Health apps and data sharing

April 29, 2019 By Susannah Fox 21 Comments

Man on a beach blocks camera with his hand

There has been a steady drip-drip-drip of articles documenting how health apps are sharing data with third parties: Data sharing practices of medicines related apps and the mobile ecosystem: traffic, content, and network analysis, by Grundy et al. (British Medical Journal, Feb. 25, 2019) You Give Apps Sensitive Personal Information. Then They Tell Facebook. Wall […]

Filed Under: demographics, health data, policy issues, trends & principles Tagged With: Fda, Health Data, Health Privacy, Hhs, Hipaa, NHS, Trustworthiness

Celebrating innovation as a problem-solving tool in government

February 25, 2019 By Susannah Fox 2 Comments

Empowering Internal Innovators

On January 6, 2017, I published my final post as the Chief Technology Officer of the U.S. Department of Health and Human Services. My intended audience included people I’d never met: the incoming agency leadership. I’d written a memo for the transition team, which greets and orients the new leaders, but I wanted to publish a […]

Filed Under: policy issues Tagged With: Hhs, innovation, open data

Well/Connected

January 11, 2019 By Susannah Fox 1 Comment

Peer to peer health advice: your community may really be your superpower

Dr. Joe Kvedar interviewed me for his podcast, Well/Connected, and I thought I’d share footnotes for all the resources I mentioned. Key findings from the national survey of 14- to 22-year-olds focused on digital health and social media use, sponsored by Hopelab and Well Being Trust, which took a special look at people living with […]

Filed Under: demographics, key people, peer-to-peer health care Tagged With: Alexandra Drane, Hhs, HopeLab Foundation, Joe Kvedar, peer-to-peer healthcare, Pew Internet, Pew Research Center, podcasts, Reframe Health, Tom Ferguson, Vicky Rideout, Well Being Trust

Get Social Health

October 9, 2018 By Susannah Fox Leave a Comment

A group of adults sitting around a campfire in the woods

Janet Kennedy recently hosted me on the Get Social Health podcast, which focuses on how social media is being used to help hospitals, clinicians, caregivers, and patients connect and engage. We discuss how Twitter hashtags can be like camp fires, where people gather to tell stories, and why I have empathy for people who don’t […]

Filed Under: social media, trends & principles Tagged With: Hhs, HopeLab Foundation, Mayo Clinic, Pew Internet, Pew Research Center, Robert Wood Johnson Foundation, Well Being Trust

Blue Button’s North Star

August 23, 2018 By Susannah Fox Leave a Comment

Red Stop sign with stickers, so it reads: DON'T STOP BELIEVING

Blue Button is a Trojan horse for culture change in the American health care system. It places power in the hands of patients and whets the data appetites of millions of Americans and the companies who would like to serve them. If you’ve never heard of Blue Button, here’s a quick overview: The federal government […]

Filed Under: health data, medical records, policy issues, positive patterns Tagged With: Blue Button, FHIR, Hhs, Mark Scrimshire, Markle Foundation, Medicare, VA, veterans, White House

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