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Susannah Fox

I help people navigate health and technology.

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Erin Moore

Public Q&A: Patient registries

March 9, 2020 By Susannah Fox 17 Comments

A community colleague asked for advice about how an organization can boost the signal for their patient registry. Recruitment levels are not what they expected and nowhere near what they need. I’m sharing what I wrote back so that others can chime in with their advice in the comments. First, look at what successful registries […]

Filed Under: health data, patient networks, public Q&A, research issues Tagged With: All of Us, cystic fibrosis, Erin Moore, ImproveCareNow, John Wilbanks, NIH, patient registries, Quality Improvement

Conference organizers:
Steal these ideas!

March 5, 2018 By Susannah Fox 19 Comments

Conference stage lit up in violet with a white X hanging over the panelists

On February 21, Larry Chu, MD, announced that Stanford Medicine X would take a hiatus. He shared the following story: Eight years ago, I posted a tweet announcing my intention to launch my first conference at Stanford. I received a variety of responses, but the one that remains the most poignant is the one I received from […]

Filed Under: beauty and wonder, e-patient stories, positive patterns Tagged With: #medxsm, Abby Norman, Bill Simpson, Britt Moody, Charlie Blotner, conferences, Erin Moore, Geri Lynn Baumblatt, Hugo Campos, Julie Flygare, Larry Chu, Sean Ahrens, Stanford Medicine X, Terry Marlin

When it comes to health, your community may be your superpower

December 8, 2017 By Susannah Fox 20 Comments

Peer to peer health advice: your community may really be your superpower

“You may not know it, but you could have a superpower.” That’s the opening line of the video we released today on DocMikeEvans’s YouTube channel: Mike Heinrich and his amazing team at Reframe Health produced the storyboards and audio effects. This project was supported by the Robert Wood Johnson Foundation Global Ideas Fund at CAF America. […]

Filed Under: peer-to-peer health care Tagged With: Erin Moore, Mike Evans, Reframe Health, Robert Wood Johnson Foundation, Wendy Sue Swanson

Tapping into my superpower – you

November 30, 2017 By Susannah Fox 12 Comments

Peer to peer health advice: your community may really be your superpower

Friends, I have a personal request. On Friday, December 8, Reframe Health Lab will release a video about peer health advice. It’s my best shot yet at inspiring people to go online not only for information, but also to connect with each other. It was an honor to work with Mike Evans, MD, and Wendy […]

Filed Under: peer-to-peer health care Tagged With: Erin Moore, Mike Evans, peer-to-peer healthcare, Robert Wood Johnson Foundation, Wendy Sue Swanson

What I’ve been working on

April 9, 2015 By Susannah Fox 1 Comment

It’s been a busy few weeks and I’d love to share a few items in one post: I served as the emcee at the Robert Wood Johnson Foundation‘s Data for Health report release event. I attempted to capture the spirit of the event in this Storify. Here’s a post I wrote about the Data for Health initiative: Imagining […]

Filed Under: e-patient stories, key people Tagged With: cystic fibrosis, Erin Moore, Robert Wood Johnson Foundation, Smart Patients

What health care can learn from Mike Mulligan and his steam shovel

February 13, 2015 By Susannah Fox 8 Comments

Google is upgrading health search…again. In 2010, I was inspired by Animal Farm to write that Google saw some health sites as more equal than others. This time I turned to Mike Mulligan and his Steam Shovel, by Virginia Lee Burton.

Filed Under: positive patterns, reforming hc, trends & principles Tagged With: #bcsm, #whatifhc, Apple, cystic fibrosis, Erin Moore, Google, HealthKit, Hugo Campos, IBM Watson, Iodine, multiple sclerosis, patientslikeme, Quantified Self, Rare Disease, Smart Patients, Stanford Medicine X

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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