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Susannah Fox

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trends & principles

One voice, many inflections: HIV clinical trial communications

May 10, 2013 By Susannah Fox 14 Comments

Demographics of Twitter, Facebook, Pinterest, Instagram, Tumblr

I’m re-sexifying the top of this post since it’s so long and I want people to get these key take-aways (read on for details on each one): Expect clinical trial participants to share news with their networks. Plan accordingly. Make your information attractive and share-able where people already are, on Facebook, Tumblr, Pinterest, etc. Find […]

Filed Under: participatory research, research issues, trends & principles Tagged With: AIDS.gov, Clinical Trials, HIV/AIDS, participatory research

Big data, red flags, better health?

May 8, 2013 By Susannah Fox 10 Comments

A new interview with Stephen Wolfram on “why he thinks your life should be measured, analyzed, and improved” popped up on the same day that American Medical News ran a story advising clinicians to look for “red flags” like unfilled prescriptions and delayed screenings since it may mean the patient has lost their job or […]

Filed Under: ethics, medical records, trends & principles Tagged With: #whatifhc, big data, Quantified Self, Stephen Wolfram

Public Q&A: How should a youth-focused sexual health clinic incorporate social media and SMS into their work?

May 6, 2013 By Susannah Fox 11 Comments

Continuing my series of public Q&A sessions, I’ll share the following: We are working on an innovation concept paper to a local foundation and would like to explore how to better use social media and SMS at youth-focused sexual health clinic. We need to be able clearly articulate the benefits of social media and SMS […]

Filed Under: demographics, public Q&A, social media, trends & principles Tagged With: HIV/AIDS, Pew Internet, Pew Research Center, sexual health, SMS, teens

How do self-trackers handle loved ones who aren’t self-trackers?

April 22, 2013 By Susannah Fox 5 Comments

— intriguing question raised by Emily Kramer-Golinkoff on Twitter. I’d love to hear if people have experiences or advice to share in the comments. I wonder if the answer depends on how visible someone’s tracking is or whether they share their activity with their loved ones. If you are new to the idea of self-tracking, […]

Filed Under: trends & principles Tagged With: Quantified Self, self-tracking

Who provides the fuel for the health data fire? Hint: Look in the mirror.

April 1, 2013 By Susannah Fox 6 Comments

“If iron ore was the raw material that enriched the steel baron Andrew Carnegie in the Industrial Age, personal data is what fuels the barons of the Internet age.” – a line from Somini Sengupta’s article in the Sunday New York Times, “Letting Down Our Guard With Web Privacy.” I think personal data is fueling health […]

Filed Under: key people, trends & principles Tagged With: Alessandro Acquisti, E-Patient Dave, Ian Eslick, New York Times, patientslikeme, privacy, Somini Sengupta, TuDiabetes, William Gunn

How many people use “ask a doctor” sites?

February 25, 2013 By Susannah Fox 7 Comments

Here’s a question I received that I thought was worth a public answer: How many people go online to seek a doctor’s opinion about something, such as on an “ask a doctor” site? Pew Research has not asked a survey question that specifically measures that activity, but we have something pretty close, based on our […]

Filed Under: peer-to-peer health care, public Q&A, trends & principles

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Recent Comments

  • Susannah Fox on Patient Input on Clinical Trials: “Great question, thank you! My impression is that our best bet is to make it appeal to study sponsors as…” Oct 17, 10:26
  • Dave deBronkart on Patient Input on Clinical Trials: “I don’t have anything to add but I have a suggestion for the problem that trialists don’t *know* about the…” Oct 16, 14:01
  • Rufus on Hack needed: Tiny pills, trembling hands: “How about using a small piece of store bought bread? Slices of bread can be “smooshed,” and a small piece…” Oct 5, 23:48

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