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Susannah Fox

I help people navigate health and technology.

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pt/doc co-care

Wow! How? Community Consults

February 1, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

“Lana,” a woman I interviewed who asked that her real name not be used, lives with mitochondrial disease and is an active member of a private Facebook group of people who share her diagnosis. Some of the members have become experts in drug interactions particular to “mito” and offer guidance to others based on their […]

Filed Under: Networkers, patient networks, peer-to-peer health care, pt/doc co-care, Seekers Tagged With: Facebook, Jack Saul, mitochondrial disease, Rebel Health, Wow! How? Health

Rare Disease Day

February 28, 2015 By Susannah Fox Leave a Comment

NIH atrium by Jason Levine

Today is Rare Disease Day, when we honor the millions of people who teach us what it’s like to live at the edges of the known world of medicine.

Filed Under: positive patterns, pt/doc co-care Tagged With: Alpha Geek, Amy Marcus, Francis Collins, NIH, Rare Disease, rare diseases

Imagining better outcomes for T1D with #MakeHealth

December 18, 2014 By Susannah Fox 8 Comments

Glucose meter displaying the number 85

This post originally appeared on Diabetes Mine. Forty-five makers, thinkers, designers and doers gathered in Cincinnati for a two-day meeting to kick off “Phase Zero” of a new initiative to imagine a new system of care for people living with Type 1 diabetes (T1D). The best way I can describe the group is that everyone […]

Filed Under: hc's problem list, net-friendly docs, pt/doc co-care, pts as teachers Tagged With: #makehealth, C3N Project, diabetes, diabetesmine, Joyce Lee, T1D Exchange, Type 1 Diabetes

“We just flipped a switch.”

October 24, 2014 By Susannah Fox Leave a Comment

“At one level, we just flipped a switch. It wasn’t a complicated, multi-faceted, variegated intervention. All we did was open up the doctor’s notes… Out of that came a cascade.” – Tom Delbanco talking about OpenNotes and how a seemingly simple change — allowing patients to view clinicians’ notes from their visits — is having […]

Filed Under: key people, medical records, net-friendly docs, positive patterns, pt/doc co-care Tagged With: OpenNotes, Robert Wood Johnson Foundation

False boundaries in health care

May 17, 2014 By Susannah Fox 39 Comments

Light bulbs in the night sky - a photo by Ted Eytan

Clayton Christensen gave a talk at last week’s SMARTHealthIT board meeting on, as he put it, how people think. I was absorbed by his storytelling, so only wrote down a few concepts: We make assumptions based on false correlations (and we should guard against that tendency). Data and maps are verbs, not nouns, and they never tell the […]

Filed Under: positive patterns, pt/doc co-care Tagged With: Clayton Christensen, Condition H, Flip the Clinic, learning health system, SMARTHealthIT, SMS

Secret questions, naked truths

April 6, 2014 By Susannah Fox 4 Comments

Google Poetics: I don't know how to...

My prepared remarks for the Quantified Self Public Health Symposium (here are some notes from the event): You know when you type the first few words of a query and Google suggests the rest based on what thousands of other people have typed next? There’s a Twitter account called Google Poetics that takes those suggested phrases […]

Filed Under: demographics, key people, pt/doc co-care, research issues Tagged With: california healthcare foundation, caregivers, chronic disease, Chronic Diseases, diabetes, Google Poetics, Kim Vlasic, Pew Research Center, QSPH, Quantified Self, tracking, Tracking for Health

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