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Susannah Fox

I help people navigate health and technology.

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peer-to-peer health care

Just-in-time help

April 18, 2014 By Susannah Fox 3 Comments

One man helping another with his tie on the T by jsperber

Jodi Sperber snapped this photo of an older man helping a younger man with his tie on the T in Boston. I love it and shared it online (after getting Jodi’s permission). Roni Zeiger was one friend I sent it to and he replied, “Networks of microexperts ready to help each other: you never know where […]

Filed Under: beauty and wonder, peer-to-peer health care, social media Tagged With: altruism, Jodi Sperber, microexperts, Unmentionables

Every-day magic

March 27, 2014 By Susannah Fox 16 Comments

I’ve been following Bertrand Might’s story for a few years through his parents’ blog about his “movement disorder” (which turns out to be related to his incredibly rare condition, NGLY1 deficiency). Last week, Matthew Might co-authored a commentary with Matt Wilsey in the journal of the American College of Medical Genetics and Genomics: “The shifting model […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: Matt Might, peer-to-peer healthcare, Rare Disease

3 home health care hacks

March 20, 2014 By Susannah Fox 49 Comments

Two sets of hands sort pills into a pillbox

I recently spent an afternoon with a dear relative who is being treated for cancer. Her medication regimen is so complicated that my mom, an experienced caregiver, visits her daily to help sort all the different pills into all the various boxes (and make sure they get swallowed). They showed off three health care hacks […]

Filed Under: key people, peer-to-peer health care Tagged With: cancer, caregivers, home health care hacks

Extremely rare, incredibly typical

February 28, 2014 By Susannah Fox 5 Comments

After nearly 15 years tracking the cultural shifts happening at the intersection of health and the internet, I know a few things. #1 – don’t get between a parent and a piece of information he or she needs to make a decision about the health of a child. #2 – from 28.8 modems to the latest smartphones, […]

Filed Under: peer-to-peer health care Tagged With: Rare Disease

Hacking home health care

February 10, 2014 By Susannah Fox 57 Comments

King Arthur large baker's peel

We need to fix the “solved problems” crisis in home health care. Let me explain. At the start of Health Foo* in December, everyone introduced themselves in 6 words or less. Row by row, person by person, 100+ people talked in turn. In the back row, nearly the last to speak, Laura Baldwin stood and […]

Filed Under: end of life, key people, peer-to-peer health care Tagged With: #InventHealth, Alzheimers, caregivers, Health Foo, home health care hacks, Invent Health, Moebius Syndrome

The network is our superpower

January 20, 2014 By Susannah Fox 22 Comments

Justice League by roadkillbuddha on Flickr

My kids love to talk about superpowers — the ability to fly, to heal, to be in two places at once, or to have super-strength. We debate the merits of each one, which combinations we would choose if we could have two, etc. I’ve come to realize that I have a superpower. We all do. […]

Filed Under: peer-to-peer health care, social media Tagged With: Dan Fleshler, diabetesmine, Lisa Bonchek Adams

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Recent Comments

  • Alex on Wow! How? Psychedelic Outlaws: “This is such a thoughtful article — I especially appreciated the way you connected the science with real-world experiences. In…” Oct 26, 01:32
  • Susannah Fox on Caregiver Survival Guide: ““Connection and community save.”” Oct 25, 12:17
  • Dona Kim Murphey on Caregiver Survival Guide: “The advice I would give is that nature solves no problem on its own – whether we are talking about…” Oct 25, 12:11

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