I adore this slide that Wendy Sue Swanson, MD, captured during a presentation by Helen Bevan. The list was formulated by Lois Kelly and I highly recommend exploring her site: Foghound.com. The word pair that resonates most with me is “alienate vs. attract,” possibly because it reminds me of my grandmother‘s advice: You catch more […]
Quantified Self Public Health is back! 150+ health geeks of many stripes will gather on Thursday, May 14, in San Diego to discuss how access to personal data could benefit individuals and society. It is an invite-only meeting (sorry!) but filled with voracious documentarians like Joyce Lee (read her Storify from last year) and, well, me (read […]
Dear Jordan, You begin your book with a beautiful description of your public writing as a love letter to your patients and to your father, who died suddenly when you were seven years old. My heart opened at that moment and I saw you in a new light. I’ve read your blog and followed your story […]
It’s been a busy few weeks and I’d love to share a few items in one post: I served as the emcee at the Robert Wood Johnson Foundation‘s Data for Health report release event. I attempted to capture the spirit of the event in this Storify. Here’s a post I wrote about the Data for Health initiative: Imagining […]
I shadowed a mom and her 5-year-old with CF from afar for 24 hours. It taught me more than I could have imagined about living with a life-shortening disease — and about myself. This “empathy exercise” was organized by Smart Patients, an online community where patients and caregivers learn from each other.
If you crave inspiration, tune in to the Robert Wood Johnson’s Pioneering Ideas podcast by subscribing to the iTunes feed or listening on Soundcloud: https://soundcloud.com/rwjf-podcasts/final-cut-episode-8/s-q4foj