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Susannah Fox

I help people navigate health and technology.

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key people

Participant-Entrepreneurs: Innovating Toward Better Health–Susannah Fox

May 13, 2010 By Susannah Fox 4 Comments

Nikolai Kirienko, Crohnology.MD Project Director, is setting a new standard for transparency in research and innovation as he blogs about his work with Project HealthDesign: On days where I could have benefited from the feedback of [Observations of Daily Living] the most, I was the least likely to be recording them. Why? On the worst […]

Filed Under: e-patient stories, key people Tagged With: Contagion Health, Crohnology.MD, CureTogether, diabetesmine, getupandmove.me, i'm too young for this, Project HealthDesign, Robert Wood Johnson Foundation, Transparency

Superheroes and rock stars at the Institute of Medicine

October 14, 2009 By Susannah Fox 7 Comments

Update: National Cancer Policy Forum published a book based on the workshop, A Foundation for Evidence-Based Practice: A Rapid Learning System for Cancer Care, which you can buy, read online for free, or download as a PDF. The discussion portion of this panel was captured in a short video. ___________________ The Institute of Medicine’s recent […]

Filed Under: key people, Why PM Tagged With: ACOR, Amy Abernethy, Annals Of Internal Medicine, Carolyn Clancy, Chordoma, Clinical Trials, Dartmouth, Emory, Gilles Frydman, Institute Of Medicine, Jamie Heywood, learning health system, Lynn Etheredge, Oncology, Paul Wallace, Transparency, Vanderbilt, Youtube

Senator Ted Kennedy was an e-patient–Susannah Fox

August 27, 2009 By Susannah Fox 2 Comments

CNN’s Elizabeth Cohen makes a compelling case in her column today: How to get Kennedy-esque health care on your budget. Anyone with internet access can gather the information they need to make better health decisions, as e-Patient Dave and Karen Parles did, and refuse to take “no” for an answer, as Sen. Kennedy did.

Filed Under: key people, news & gossip, patient networks, trends & principles Tagged With: Anyone With Internet Access, Better Health, Budget, Cnn, Elizabeth Cohen, Esque, health care, Health Decisions, Senator Kennedy, Senator Ted Kennedy, Ted Kennedy, white paper

Doing Our Best to Blow Your Minds (Emerging Trends in Chronic Disease Care)

January 8, 2009 By Susannah Fox 6 Comments

Here is my third post in a series of look-backs at the November 2008 Chronic Disease Care conference in San Francisco. (OK, yes, it’s now January 2009 — I’m savoring the experience, not Twittering it!) The first post was about spreading improvement beyond early adopters, the second was devoted to patient voices, and this will […]

Filed Under: key people, net-friendly docs, patient networks, positive patterns Tagged With: diabetesmine, hellohealth, participatory medicine, patientslikeme

Breaking News at Hematology Meeting – for Patients–Susannah Fox

December 11, 2008 By Susannah Fox 9 Comments

Andrew Schorr is the founder of Patient Power, LLC, and shares this dispatch, his second for e-patients.net: I had a whirlwind weekend at the Moscone Center in San Francisco where I broadcast five and a half hours of live interviews with leading hematologists and hematologist/oncologists on the latest news in a variety of chronic conditions. […]

Filed Under: key people, net-friendly docs Tagged With: Andrew Schorr, chronic lymphocytic leukemia, chronic myelogenous leukemia, lymphoma, multiple myeloma, Patient Power, podcasts, sickle cell anemia

Psych Central in Time’sTop 50–Susannah Fox

June 17, 2008 By Susannah Fox Leave a Comment

Congratulations to our own John Grohol, CEO & Publisher of Psych Central, which has just been named one of the 50 best websites by Time magazine! (Check out the rest of the list. I’m having fun reading up on food ingredients on Zeer.)

Filed Under: key people

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  • Susannah Fox on A survey about clinical trial support groups: “Hi Diane, here is one article I found about Tirzepatide — a drug that’s in the headlines these days since…” Mar 9, 10:37
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