Necessity is the mother of invention. I have been profoundly moved over the past few months by a handful of people who have been forced to live this idiom or who have stepped up to the challenge of aiding wounded warriors. In honor of Veterans Day, please take a moment to learn about these inspiring […]
key people
“Give Us Our Dammed Data” – Regina Holliday–Susannah Fox
17 authors with weapons in hand stare down upon the viewer. The three panel painting measures 60 inches by 144 inches. It is a very large painting, and yet it is crowded with those who have been hurt and those who have suffered. Every one of them is an author. Nearly everyone in the painting […]
Laugh, Sing, and Eat Like a Pig–Susannah Fox
e-Patient Dave’s book, Laugh, Sing, and Eat like a Pig, is out! Mark Graban captures the health geek excitement: The best writers make you feel like you’re spending time with a wise friend — add some tears and laughs and you have Dave’s book. I wasn’t there for his whole journey, so I’m learning new […]
Participant-Entrepreneurs: Innovating Toward Better Health–Susannah Fox
Nikolai Kirienko, Crohnology.MD Project Director, is setting a new standard for transparency in research and innovation as he blogs about his work with Project HealthDesign: On days where I could have benefited from the feedback of [Observations of Daily Living] the most, I was the least likely to be recording them. Why? On the worst […]
Superheroes and rock stars at the Institute of Medicine
Update: National Cancer Policy Forum published a book based on the workshop, A Foundation for Evidence-Based Practice: A Rapid Learning System for Cancer Care, which you can buy, read online for free, or download as a PDF. The discussion portion of this panel was captured in a short video. ___________________ The Institute of Medicine’s recent […]
Senator Ted Kennedy was an e-patient–Susannah Fox
CNN’s Elizabeth Cohen makes a compelling case in her column today: How to get Kennedy-esque health care on your budget. Anyone with internet access can gather the information they need to make better health decisions, as e-Patient Dave and Karen Parles did, and refuse to take “no” for an answer, as Sen. Kennedy did.
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