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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

How did you find your people?

April 17, 2017 By Susannah Fox 33 Comments

The internet gives us access not only to information, but also to each other. That deceptively simple insight, gained from years of research, contains so much of the hope I have for the future of health and health care. When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. […]

Filed Under: peer-to-peer health care Tagged With: ACOR, ALS, cancer, cystic fibrosis, Danny Sands, E-Patient Dave, Emily Kramer-Golinkoff, patientslikeme, peer-to-peer healthcare, Smart Patients

The online health revolution (it’s not too late to jump in)

April 11, 2017 By Susannah Fox 4 Comments

Thanks to Joyce Lee, MD, for resurfacing this talk on Twitter today! In watching it again, I’m struck by how the data needs to be updated, but the insights don’t. Clinicians have not yet missed their chance to contribute to the online health revolution (nearly 4 years later)! The tools are going to change, but what […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: Clinicians, Pew Internet

DIY innovation in the hospital

March 27, 2017 By Susannah Fox 1 Comment

My grandfather, Frank H.J. Figge, was a cancer researcher who faced shortages during World War II and had to improvise to keep his lab going. When he ran short of quartz lenses he remembered hearing that plastic also transmits ultraviolet rays and filled synthetic sausage casings with water to create a perfect — much cheaper — substitute. Nurses have […]

Filed Under: key people Tagged With: home health care hacks, innovation, Lemelson Center, maker movement, nurses

Nurses in the Smithsonian spotlight

February 27, 2017 By Susannah Fox Leave a Comment

Exterior of the National Museum of American History in Washington, DC, with the Washington Monument in the background

The people best suited to solve a problem are often those experiencing it. Experimentation — and documentation — should be part of everyone’s toolbox, no matter where you sit in an organization or hierarchy. Prototypes should be shared, not hidden away. Early feedback is golden. Everyone is a potential innovator. I’m excited to explore these themes and more with Tiffany […]

Filed Under: key people Tagged With: innovation, Invent Health, maker movement, nursing

“His doctors were stumped. Then he took over.”

February 5, 2017 By Susannah Fox Leave a Comment

New York Times Sunday Business story on Feb. 5, 2017: Doctor, Cure Thyself

How might we empower people to participate in research about their own diseases or conditions? Which models work best for organizations solving medical mysteries or improving care for those living with rare conditions? These are two of the questions raised by a New York Times story today: “His doctors were stumped. Then he took over,” by Katie Thomas […]

Filed Under: hc's problem list, key people, participatory research, patient networks, peer-to-peer health care Tagged With: C3N Project, David Fajgenbaum, patientslikeme, peer-to-peer healthcare, Rare Disease, Smart Patients

Invent Health

November 27, 2016 By Susannah Fox 2 Comments

As winter sets in here in DC, I’m warming up with memories of September’s Stanford Medicine X conference. I loved putting together a keynote that highlighted how the maker movement intersects with the e-patient movement — and how private sector and government leaders can benefit. This intersection, and the lessons we are learning from it, are the latest examples […]

Filed Under: peer-to-peer health care, policy issues Tagged With: Hhs, home health care hacks, Invent Health, Stanford Medicine X

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Recent Comments

  • Lisa Suennen on Wow! How? Community: “That is a beautiful story. Kids always have the best answers” Aug 29, 11:31
  • Susannah Fox on Lessons learned about hospice care: “Zoe, thank you for the unvarnished comment! We need to go into end of life with our eyes open in…” Aug 5, 14:20
  • Zoe on Lessons learned about hospice care: “I despise home hospice and the entire industry can kiss my ass. I was duped into caring for my dying…” Aug 5, 03:45

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