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Susannah Fox

I help people navigate health and technology.

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Archives for July 2014

Who is ready to stand naked in front of the mirror of data?

July 29, 2014 By Susannah Fox Leave a Comment

In this talk at the Quantified Self Public Health symposium, I argue that we must respect the context of people’s lives while designing health interventions, tools, and research projects. Not everyone is ready to stand naked in front of the bright light of numbers on a screen. Let’s be gentle in our approach, especially to […]

Filed Under: health data, trends & principles Tagged With: california healthcare foundation, caregivers, chronic disease, Google Poetics, Health Data, Pew Research Center, QSPH, Quantified Self, Robert Wood Johnson Foundation, self-tracking, Tracking for Health

Medicine fails, patient is frustrated: Google

July 22, 2014 By Susannah Fox 9 Comments

Medicine fails, patient is frustrated: Google - by Jessica Hagy

Jessica Hagy is one of my favorite social commentators, so I was thrilled to meet her in person at the 2010 Mayo Transform conference, curated by David Rosenman. Here is one of her cartoons from that event: I have shared the image on Twitter a few times, including today, when I wrote that I’d add […]

Filed Under: hc's problem list, social media Tagged With: David Rosenman, Jessica Hagy, Mayo Clinic, Mayo Transform

I’m leaving Pew Research

July 17, 2014 By Susannah Fox 84 Comments

Believe it or not, 14 years ago, the idea of using the internet for health was a novel concept. That’s when Pew Internet published its first report about the social impact of the internet on health and health care, raising eyebrows across the U.S. Our data was cited in mainstream news outlets, in JAMA, and, […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: california healthcare foundation, Pew Charitable Trusts, Pew Internet, Pew Research Center, Robert Wood Johnson Foundation, Thomas Goetz, Tom Ferguson

How did we get here? And where are we going?

July 15, 2014 By Susannah Fox 17 Comments

The Vasa, which sank on its maiden voyage in 1628

Video of my talk in Sweden is now online (skip to minute 7 unless you speak Swedish): It’s a comprehensive summary of my research so far, as well as an argument for listening to patients and caregivers as we move forward into the future. I opened with an example that was inspired by a visit […]

Filed Under: participatory research, patient networks, peer-to-peer health care, trends & principles Tagged With: C3N Project, cystic fibrosis, patientslikeme, peer-to-peer healthcare, Pew Internet, Pew Research Center, scurvy, Sweden, video

McKinsey’s “Healthcare digital future” checks out

July 12, 2014 By Susannah Fox 5 Comments

Pew Research: Caregivers and Health Care Reviews Online

Stefan Biesdorf and Florian Niedermann of McKinsey wrote an excellent essay laying out 5 myths about health care and technology. It rings true so I decided to add my own evidence to their points: McKinsey Myth 1: People don’t want to use digital services for healthcare Pew Research has found that looking for health information is consistently […]

Filed Under: demographics, hc's problem list, trends & principles Tagged With: Dave Clifford, Eric Topol, McKinsey, mobile, Pew Internet, Pew Research Center, SMARTHealthIT

Just in time someone like me

July 8, 2014 By Susannah Fox 12 Comments

Teens want just in time someone like me

In 2005, I took a call from someone who worked at Planned Parenthood. He wanted the conversation to be off the record, so I didn’t even write down his name, which is a shame because that conversation changed the direction of my career. The caller had seen media coverage of Pew Internet’s health research, probably […]

Filed Under: peer-to-peer health care Tagged With: peer-to-peer healthcare, Pew Internet, sexual health, Tom Ferguson

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