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Susannah Fox

I help people navigate health and technology.

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Health Datapalooza IV

June 2, 2013 By Susannah Fox Leave a Comment

I will be part of a panel on self-tracking at the Health Datapalooza in Washington, DC, on Tuesday. My fellow panelists include Naveen Selvadurai, a co-founder of Foursquare; Roger Magoulas, the director of market research at O’Reilly Media; Jodi Daniel, director of the Office of Policy and Planning at the Office of the National Coordinator for Health Information Technology; and Abdul Shaikh of National Cancer Institute’s Health Communication and […]

Filed Under: positive patterns Tagged With: Health Datapalooza, Quantified Self, self-tracking, Tracking for Health

Caregivers, please share your stories

May 28, 2013 By Susannah Fox 16 Comments

The Pew Research Center will release a new report about caregivers in June. As we prepare, I’m looking for stories to share with reporters so they can better understand the context for our data. If you have experience caring for a family member, a friend, or a neighbor, either now or in the past, please […]

Filed Under: end of life, hc's problem list, key people, peer-to-peer health care Tagged With: AARP, Alzheimers, caregivers, National Family Caregivers Association

Work on stuff that matters: health care edition

May 24, 2013 By Susannah Fox 7 Comments

Frog in a pot of water

That’s a Tim O’Reilly maxim, not original to me. I quoted it, exasperated, after reading this article: The biggest merger you didn’t hear about yesterday If you haven’t read it yet, please do. It is damn good and damn right. Sorry. It’s just that I feel like the frog in the pot who just saw the […]

Filed Under: hc's problem list, social media

Have you ever wondered what it’s like to have Cystic Fibrosis?

May 22, 2013 By Susannah Fox Leave a Comment

Erin Moore, the mom-warrior who created that video, also wrote this essay: Are patients a distraction? I think not… Watch, read, cry, be inspired. I sure am.

Filed Under: e-patient stories Tagged With: caregivers, cystic fibrosis

“Learning is a lot more fun—and a lot more effective—when it’s social. Tweet & NEVER eat alone.”

May 20, 2013 By Susannah Fox 2 Comments

— Mike Nelson, in one of 17 “nuggets” of wisdom he tweeted today. Click through on all the links. They’re worth your time.

Filed Under: key people

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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