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Susannah Fox

I help people navigate health and technology.

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A good death

January 19, 2018 By Susannah Fox 28 Comments

Black and white image of two hands, clasped. One person is wearing a hospital ID bracelet.

You might think, looking at the open tabs on my browser, that I’ve got death on my mind. And you would be right. My father passed away in December from melanoma. The end was about as peaceful as we could have hoped for, but it was still hard to watch. I spent most of what […]

Filed Under: end of life, peer-to-peer health care Tagged With: cancer, end of life, family, Family Caregivers

Unrest

January 8, 2018 By Susannah Fox 1 Comment

Jennifer Brea, director of the film Unrest, lies in bed with EEG leads on her head

The film “Unrest” will debut on Independent Lens this week (check your local listings — in the DC area it will air on Jan. 12 at 10:30pm on WETA). I couldn’t wait and bought my own digital copy on Amazon. Let me just say: It’s no surprise that it’s on the short list for an Academy […]

Filed Under: e-patient stories, key people, patient networks, peer-to-peer health care, policy issues Tagged With: chronic fatigue syndrome, Jennifer Brea, Marfan syndrome, ME/CFS, myalgic encephalomyelitis, peer-to-peer healthcare, Rare Disease, rare diseases

When it comes to health, your community may be your superpower

December 8, 2017 By Susannah Fox 20 Comments

Peer to peer health advice: your community may really be your superpower

“You may not know it, but you could have a superpower.” That’s the opening line of the video we released today on DocMikeEvans’s YouTube channel: Mike Heinrich and his amazing team at Reframe Health produced the storyboards and audio effects. This project was supported by the Robert Wood Johnson Foundation Global Ideas Fund at CAF America. […]

Filed Under: peer-to-peer health care Tagged With: Erin Moore, Mike Evans, Reframe Health, Robert Wood Johnson Foundation, Wendy Sue Swanson

Waiting with open arms

December 4, 2017 By Susannah Fox Leave a Comment

Wave Group Photo by Michael Cannon on Flickr

I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Emily Kramer-Golinkoff, in response to “A field guide to The Diagnosis Difference” (2013): My advice to a person or parent of a child newly diagnosed with Cystic Fibrosis would be: “I can only imagine […]

Filed Under: featured commenters, peer-to-peer health care Tagged With: cystic fibrosis, Emily Kramer-Golinkoff, Stanford Medicine X

Tapping into my superpower – you

November 30, 2017 By Susannah Fox 12 Comments

Peer to peer health advice: your community may really be your superpower

Friends, I have a personal request. On Friday, December 8, Reframe Health Lab will release a video about peer health advice. It’s my best shot yet at inspiring people to go online not only for information, but also to connect with each other. It was an honor to work with Mike Evans, MD, and Wendy […]

Filed Under: peer-to-peer health care Tagged With: Erin Moore, Mike Evans, peer-to-peer healthcare, Robert Wood Johnson Foundation, Wendy Sue Swanson

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