New concepts need gimmicks. Proven concepts do not. The phenomenon of using the internet to gather and share health information is now mainstream. It’s time to change how we talk about it, revising and maybe even retiring certain terms. Carlos Rizo and I invite you (everyone!) to join our discussion on Wed. Sept. 1 at […]
Pew Internet
Patient Communities: Which Way Forward?–Susannah Fox
If you were designing a disease treatment system from scratch, bringing together clinicians, patients, researchers, and advocates, what platform would you use to take advantage of the community created by this umbrella group? This isn’t just some health geek SimCity exercise. I was actually asked that question recently, by people who have lined up the […]
Mobile, Social Health at the National Library of Medicine–Susannah Fox
Update: The NLM released new widgets on July 14, along with a redesigned MedlinePlus site. (Read @eagledawg‘s take on these new tools, as well as her response to this post.) Speaking to the senior staff of the National Library of Medicine last week was like going before the best kind of murder board. Picture it: […]
A New Conversation About Health Privacy: Who’s In?
Facebook has sparked a new debate about privacy and I think it’s time to bring it to health care. What does it mean when millions of people flock to share/overshare information, even as Facebook’s default privacy settings have slowly become openness settings (but the company maintains radio silence)? Pew Internet research shows that a sizeable […]
Frequently Asked (But Unanswered) Questions About E-patients
As I’ve written before, I love questions. It’s an honor to be handed someone’s nascent idea and to help them shape it (which is what I think a question really is). But this time I’m asking for YOUR input. These excellent questions were sent to me by Liav Hertsman and his colleagues at Tel Aviv […]
Chronic Disease in Data and Narrative–Susannah Fox
For the past 5 months I have been immersed in data and narrative about chronic disease. The result, “Chronic Disease and the Internet,” is a report sponsored by the Pew Internet Project and the California HealthCare Foundation. We find that living with a heart condition, lung condition, high blood pressure, diabetes, and/or cancer has an […]
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