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Susannah Fox

I help people navigate health and technology.

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Jane Sarasohn-Kahn

Discovery Diaries with Damon Davis

May 16, 2024 By Susannah Fox Leave a Comment

Rebel Health: A field guide to the patient-led revolution in medical care

Damon Davis has a new podcast, Discovery Diaries, and I was honored be among his first guests. We got into a wide range of topics: the origins of my interest in patient-led innovation; artificial intelligence and how patients, survivors, and caregivers should be included in the design of AI tools; our time working together at […]

Filed Under: Champions, Networkers, Seekers, Solvers Tagged With: AA, Ben West, Black Panther Party, Bryan Mazlish, caregivers, Damon Davis, Dana Lewis, diabetes, E-Patient Dave, Fda, food allergy, Hhs, Hugo Campos, Jane Sarasohn-Kahn, peer-to-peer healthcare, Regina Holliday

Zooming into each other’s homes

August 3, 2020 By Susannah Fox 2 Comments

A student looks at a laptop screen while sitting up in bed with a cat and dog nearby

My friend and community colleague Margie Morris wrote a wonderful article for a clinical neuroscience journal that, with her permission, I am excerpting for a series of posts (if you missed it, here’s the first one). She writes: To meaningfully connect, we will need to do more than show up online. Now, more than ever, […]

Filed Under: key people Tagged With: COVID19, Jane Sarasohn-Kahn, Margaret Morris, Pew Research Center

A Matter of Trust, Perception, Risk, and Uncertainty

July 1, 2019 By Susannah Fox 18 Comments

Black and white image that resembles a Rorschach ink blot

The Big Issues Raised by the Acquisition of PatientsLikeMe and Other Patient Data Transactions By Susannah Fox, Jane Sarasohn-Kahn and Lisa Suennen I’ve lived long enough to have learned The closer you get to the fire the more you get burned But that won’t happen to us Cause it’s always been a matter of trust -A […]

Filed Under: health data, news & gossip, patient networks, peer-to-peer health care, policy issues Tagged With: ALS, Jane Sarasohn-Kahn, Lisa Suennen, patientslikeme, Trustworthiness

The unmentionables of health care

October 7, 2013 By Susannah Fox Leave a Comment

I plan to write more about my field trip to the future California, but for now here is the Storify I created about one incredible panel: Unmentionables 2013 at Health 2.0 Santa Clara. [<a href=”//storify.com/SusannahFox/unmentionables-2013″ target=”_blank”>View the story “Unmentionables 2013” on Storify</a>]

Filed Under: trends & principles Tagged With: Alexandra Drane, caregivers, Gabrielle Glaser, health 2.0, Jane Sarasohn-Kahn, Jessica Hagy, Joan Kennedy, Ramin Bastani, Unmentionables, Wendy Lynch

Twitter: filter, suggestion box, idea machine, window

October 18, 2010 By Susannah Fox 20 Comments

On Friday I dashed off this tweet: PhD student just asked me which journals I read to stay up to date on health + tech. My answer: Twitter. It was classic RT bait and indeed it was echoed dozens of times by fellow Twitter geeks — more than any other tweet I’ve written.  But I […]

Filed Under: trends & principles Tagged With: #HeLa, Alex Howard, Andre Blackman, Brian Ahier, danah boyd, E-Patient Dave, Gilles Frydman, Jane Sarasohn-Kahn, Kent Bottles, Mark Hawker, Mothers with Cancer, Nejm, P.F. Anderson, Pew Internet, Stowe Boyd, Tim O'Reilly, Twitter, Wendy Sue Swanson

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Recent Comments

  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
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