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Susannah Fox

I help people navigate health and technology.

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Fda

Wow! How? “Breaking Brad”

March 6, 2025 By Susannah Fox 2 Comments

A pipette hovers above a dozen test tubes

The latest in my series of stories that hopefully make you say, “Wow! How did they come up with that?” Bradley Burnam loved his job as a medical device sales rep because, as he puts it, he got to play doctor: wear scrubs, visit hospitals, and work with patients. But during one site visit he […]

Filed Under: Champions, Seekers, Solvers Tagged With: Bradley Burnam, Fda, infection control, Rebel Health, Turn Therapeutics, wound care, Wow! How? Health

Discovery Diaries with Damon Davis

May 16, 2024 By Susannah Fox Leave a Comment

Rebel Health: A field guide to the patient-led revolution in medical care

Damon Davis has a new podcast, Discovery Diaries, and I was honored be among his first guests. We got into a wide range of topics: the origins of my interest in patient-led innovation; artificial intelligence and how patients, survivors, and caregivers should be included in the design of AI tools; our time working together at […]

Filed Under: Champions, Networkers, Seekers, Solvers Tagged With: AA, Ben West, Black Panther Party, Bryan Mazlish, caregivers, Damon Davis, Dana Lewis, diabetes, E-Patient Dave, Fda, food allergy, Hhs, Hugo Campos, Jane Sarasohn-Kahn, peer-to-peer healthcare, Regina Holliday

Wow! How? Hospital Alarms

February 23, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

Yoko Sen is a musician who, when spending time in a hospital as a patient in 2012, noticed that her cardiac monitor and another patient’s fall-risk alarm created a spooky chord known as the devil’s interval. Composers use it sparingly because it sounds so foreboding. Even in a weakened state, Sen began asking questions about […]

Filed Under: Champions, Solvers Tagged With: Fda, Larry Chu, Nick Dawson, Philips, Rebel Health, Wow! How? Health, Yoko Sen

Wow! How? Patient Data Rights

February 8, 2024 By Susannah Fox 2 Comments

Wow! How? Health

Until relatively recently, people living with diabetes were shut out of conversations about improving the devices that keep them alive. Device manufacturers saw clinicians as their customers, not patients, and nobody was asking them to change that stance, including the FDA.  Patients and their loved ones were grateful to have insulin pumps and continuous glucose […]

Filed Under: health data, key people, Networkers, policy issues, Solvers Tagged With: American Diabetes Association, Anna McCollister, Dexcom, diabetes, Fda, Howard Look, MIT Press, Networkers, Rebel Health, Solvers, Tidepool, Wow! How? Health

Celebrating invention and innovation

July 15, 2019 By Susannah Fox 7 Comments

Tools by Dorli Photography on Flickr

We are going to need all the ingenuity and help we can get to untangle and improve health and health care. Everyone should have access to the data, information, and tools they need to solve problems. That includes access to each other – peer to peer. My hope is for people to look at a […]

Filed Under: positive patterns Tagged With: #InventHealth, Fda, George Hacks, Hhs, Invent Health, Lemelson Center, maker movement, prize competitions, veterans

Trust gap: Health apps and data sharing

April 29, 2019 By Susannah Fox 21 Comments

Man on a beach blocks camera with his hand

There has been a steady drip-drip-drip of articles documenting how health apps are sharing data with third parties: Data sharing practices of medicines related apps and the mobile ecosystem: traffic, content, and network analysis, by Grundy et al. (British Medical Journal, Feb. 25, 2019) You Give Apps Sensitive Personal Information. Then They Tell Facebook. Wall […]

Filed Under: demographics, health data, policy issues, trends & principles Tagged With: Fda, Health Data, Health Privacy, Hhs, Hipaa, NHS, Trustworthiness

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