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Susannah Fox

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disability

Q&A with Deborah Kalb

May 6, 2024 By Susannah Fox Leave a Comment

Book cover: Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care by Susannah Fox. Blue type on a yellow field

Deborah Kalb’s blog is a treasure chest full of Q&As with authors and illustrators and I’m honored to now be part of it. 1. What inspired you to write Rebel Health, and how was the book’s title chosen? As a researcher, I spend time in communities led by patients and caregivers who build new medical and assistive […]

Filed Under: Champions, Networkers, Solvers Tagged With: AA, ACT-UP, Black Panther Party, disability, Esther Perel, Fountain House, La Leche League, Rebel Health

Wow! How? Home inventors

October 20, 2023 By Susannah Fox Leave a Comment

Tile floor of a bathhouse

Hot springs have always been therapeutic destinations, but it was a father, desperate to relieve his child’s pain, who invented the home spa. Candido Jacuzzi, a mechanical engineer, and his wife, Inez, tried everything to help their son, who was suffering from juvenile rheumatoid arthritis. Hydrotherapy helped immensely, so Candido set to work, eventually building […]

Filed Under: positive patterns, pts as teachers, Solvers Tagged With: arthritis, disability, home health care hacks, Invent Health, maker movement, Rebel Health, Solvers, Wow! How? Health

Update: A Seat at the Table

June 1, 2019 By Susannah Fox 7 Comments

Fortifications at Colonial Willamsburg by Kate Mereand-Sinha

Last November I attended FAREcon, an annual event devoted to food allergy research and education. I published my notes in a long, deep-dive post that included one short section on pending litigation (below). I’m thrilled to report a positive update: “A federal appeals court Friday ruled against the tavern that refused to let the child […]

Filed Under: key people, policy issues Tagged With: disability, food allergy, Rare Disease

“There are 3 types of people…”

July 16, 2012 By Susannah Fox Leave a Comment

“People who think that people with disabilities can’t do anything, that we’re fragile and in need. People who think we are inspirational and think we can fly to the moon if we wanted to. People who treat us like everyone else, who know that we’ll ask for help if we need it but otherwise we’re […]

Filed Under: research issues Tagged With: disability, Moebius Syndrome

What people living with disability can teach us

January 26, 2011 By Susannah Fox 10 Comments

The Pew Internet Project recently issued a short report noting that people living with disability are less likely than other adults in the U.S. to use the internet: 54%, compared with 81%. The first question many people ask when they hear that is, Why? The second is, What can be done? The third is, or […]

Filed Under: medical records, policy issues Tagged With: connected health, digital divide, disability, HCI, HIT, human-computer interaction, mobile, Pew Internet, PHR, usability

Access is (almost) everything–Susannah Fox

December 22, 2009 By Susannah Fox 1 Comment

Or: Why health geeks should pay attention to internet access geeks. The Pew Research Center’s Hispanic Project and Internet Project just released an in-depth look at internet penetration across racial and ethnic categories in the U.S.: Latinos Online, 2006-2008 From 2006 to 2008, internet use among Latino adults rose by 10 percentage points, from 54% to 64%.  […]

Filed Under: demographics Tagged With: Access Health, Access Numbers, Baby Boomers, Chronic Conditions, chronic disease, Chronic Diseases, Communicating With Friends, diabetes, disability, Ethnic Categories, Gap, Geeks, health information, Health Problems, Heart Conditions, High Blood Pressure, Income Households, internet access, Internet Penetration, Internet Project, Internet Use, Last Time, Latino Adults, Latinos, Lung Conditions, Moot Point, Older Adults, Percentage Points, Pew Research Center, Saturation, Time Period

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  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
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