As a researcher, I track the social impact of the internet on American society, particularly as it relates to health and health care. My most recent research report, “Rare Disease in the U.S. 2025,” was released on February 25, 2025. Key findings include: 63% of U.S. adults who reported living in a rare disease household have, in […]
Search Results for: internet access
How did you find your people?
The internet gives us access not only to information, but also to each other. That deceptively simple insight, gained from years of research, contains so much of the hope I have for the future of health and health care. When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. […]
Invent Health
As winter sets in here in DC, I’m warming up with memories of September’s Stanford Medicine X conference. I loved putting together a keynote that highlighted how the maker movement intersects with the e-patient movement — and how private sector and government leaders can benefit. This intersection, and the lessons we are learning from it, are the latest examples […]
Documents of controversial times
I’m speaking today at Stanford Medicine X about what I’ve learned exploring the intersection between the Maker movement and health care (tune in at 4:25pm Pacific). I posted a short version of my remarks on Medium, but I thought I’d post an image I was very happy to find to illustrate one theme: revolutions happen when people are […]
The Power of Connection
Technology enables the mission of U.S. Department of Health & Human Services (HHS). It widens access to information and tools and pushes power out to all parts of the network, from our colleagues in the federal workforce to our fellow citizens. At HHS, we seek to create a learning system that recognizes the potential of […]
I’m the New CTO of HHS
I am thrilled to share the news that I am the new Chief Technology Officer at the U.S. Department of Health and Human Services. Grateful for the opportunity to serve under the leadership of Secretary Burwell — truly an extraordinary person. Full post (originally appeared on HHS.gov): When I left the Pew Research Center to advise […]
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