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Susannah Fox

I help people navigate health and technology.

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Search Results for: internet access

Aging, housing, health

September 12, 2017 By Susannah Fox 2 Comments

Early 20th century typewriter keys

Brandeis University hosted a one-day symposium on aging, housing, health, technology, and other issues. Thanks to the people who captured these insights!

Filed Under: demographics, policy issues, trends & principles Tagged With: Alan Kay, Alexandre Kalache, Atlas of Caregiving, Brandeis University, caregivers, Danny Sands, Leslie Kernisan, Muriel Gillick, Pamela Ressler, Pippa Shulman, Rosalie Yerkes Figge, Ruth Finkelstein

Research

15% of U.S. adults live in a household affected by rare disease or an undiagnosed illness

As a researcher, I track the social impact of the internet on American society, particularly as it relates to health and health care. “Caregiving in America: The Common Thread in Every Community,” was released on September 23, 2025. Approximately 93 million adults provide unpaid care to at least one person. Caregiving is equally prevalent across genders, income […]

How did you find your people?

April 17, 2017 By Susannah Fox 33 Comments

The internet gives us access not only to information, but also to each other. That deceptively simple insight, gained from years of research, contains so much of the hope I have for the future of health and health care. When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. […]

Filed Under: peer-to-peer health care Tagged With: ACOR, ALS, cancer, cystic fibrosis, Danny Sands, E-Patient Dave, Emily Kramer-Golinkoff, patientslikeme, peer-to-peer healthcare, Smart Patients

Invent Health

November 27, 2016 By Susannah Fox 2 Comments

As winter sets in here in DC, I’m warming up with memories of September’s Stanford Medicine X conference. I loved putting together a keynote that highlighted how the maker movement intersects with the e-patient movement — and how private sector and government leaders can benefit. This intersection, and the lessons we are learning from it, are the latest examples […]

Filed Under: peer-to-peer health care, policy issues Tagged With: Hhs, home health care hacks, Invent Health, Stanford Medicine X

Documents of controversial times

September 16, 2016 By Susannah Fox 5 Comments

Common Sense, a pamphlet by Thomas Paine (1776)

I’m speaking today at Stanford Medicine X about what I’ve learned exploring the intersection between the Maker movement and health care (tune in at 4:25pm Pacific). I posted a short version of my remarks on Medium, but I thought I’d post an image I was very happy to find to illustrate one theme: revolutions happen when people are […]

Filed Under: peer-to-peer health care, positive patterns Tagged With: home health care hacks, Invent Health, peer-to-peer healthcare

The Power of Connection

June 25, 2015 By Susannah Fox Leave a Comment

Portraits of past HHS secretaries above Post-its

Technology enables the mission of U.S. Department of Health & Human Services (HHS). It widens access to information and tools and pushes power out to all parts of the network, from our colleagues in the federal workforce to our fellow citizens. At HHS, we seek to create a learning system that recognizes the potential of […]

Filed Under: peer-to-peer health care, policy issues, positive patterns, reforming hc, trends & principles Tagged With: Fda, Health Datapalooza, Hhs, iTriage, maker movement, patientslikeme

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Recent Comments

  • Rufus on Hack needed: Tiny pills, trembling hands: “How about using a small piece of store bought bread? Slices of bread can be “smooshed,” and a small piece…” Oct 5, 23:48
  • James on Wow! How? Obesity Treatment: “Inspiring read! Ilant Health’s holistic, shame-free approach to obesity care is exactly what’s needed to address a complex condition with…” Sep 30, 01:23
  • Susannah Fox on Caregiving in America: “I hear you, Mickey! You likely already know about Caring Across Generations and other organizations that have tried to move…” Sep 25, 14:51

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