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Susannah Fox

I help people navigate health and technology.

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shared decision making

Engage with Grace

November 22, 2023 By Susannah Fox 4 Comments

Red leaves with water droplets

Can you and your loved ones answer these questions?  1. On a scale of 1 to 5, where do you fall on this continuum: 1 = Let me die without medical intervention; 5 = Don’t give up on me no matter what, try any proven and unproven intervention possible. 2. If there were a choice, […]

Filed Under: shared decision making Tagged With: Alexandra Drane, Arden O’Connor, Eliza Corp, end of life, Engage with Grace, family, Leigh Calabrese-Eck, Sarah Stephens Winnay, Taylor Lorenz

Engage with Grace

November 23, 2022 By Susannah Fox 9 Comments

5 questions about end-of-life choices

Can you and your loved ones answer these questions? 1. On a scale of 1 to 5, where do you fall on this continuum: 1 = Let me die without medical intervention; 5 = Don’t give up on me no matter what, try any proven and unproven intervention possible. 2. If there were a choice, […]

Filed Under: end of life, shared decision making Tagged With: caregivers, Engage with Grace, family

Project management for caregivers

March 1, 2020 By Susannah Fox 22 Comments

Cancer worksheet

I am a caregiver. I help coordinate the health and home care for an elder loved one who, for the purposes of maintaining a bit of anonymity, I will call “M.” He is a healthy, happy octogenarian. We have known each other for nearly 40 years, but we are not related by blood. I am […]

Filed Under: peer-to-peer health care, shared decision making Tagged With: cancer, caregivers, design, elderly, end of life, family, Older Adults

“What drugs is mom on?”

November 19, 2013 By Susannah Fox 1 Comment

Here are quotes from two excellent essays about being an empowered caregiver. First, from Muriel Gillick, MD: In those care planning meetings in the nursing home, if they ask nothing else, family members should ask “what drugs is mom on?” And that should be followed by “why is she on them?” and “are they helping?” […]

Filed Under: end of life, shared decision making Tagged With: Anna Quindlen, caregivers, drugs, Muriel Gillick

Chicken soup for decision-makers

September 13, 2013 By Susannah Fox 2 Comments

Ceramic casserole with a shino glaze by Marcia Halperin

Half of all health searches in the U.S. are done on behalf of someone else. That’s been a core finding of the Pew Research Center’s health portfolio since 2000. We have called information the new chicken soup of the digital age, brought to the bedside by people who want to help. Now, in the social […]

Filed Under: end of life, hc's problem list, shared decision making Tagged With: hospice, palliative care, Pew Internet, Pew Research Center, rehab

Taking care (what I’m reading)

July 19, 2013 By Susannah Fox 4 Comments

The following articles stopped me in my tracks this week, not least because they relate to my last report, “Family Caregivers are Wired for Health.” Please share what you’re reading — or your thoughts about these articles — in the comments. 1. Dementiaville: How an experimental new town is taking the elderly back to their happier […]

Filed Under: e-patient stories, shared decision making Tagged With: #whatifhc, Alexandra Drane, Bill Thomas, caregivers, Carolyn Thomas, health 2.0, Nick Dawson, Unmentionables

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