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Susannah Fox

I help people navigate health and technology.

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pts as teachers

YouTube = Health Education Channel

October 8, 2012 By Susannah Fox 3 Comments

Two videos recently impressed me with their use of illustration and narration to educate an audience about health. First, the most recent video by Mike Evans, MD, who curates My Favourite Medicine: Second, one by the 6-year-old son of Joyce Lee, MD, MPH: Joyce wrote a thoughtful post about why she helped her son create […]

Filed Under: net-friendly docs, peer-to-peer health care, pts as teachers Tagged With: food allergy

Listening to patients at Medicine 2.0

September 18, 2012 By Susannah Fox Leave a Comment

I wrote a long post on e-patients.net about my one day at Medicine 2.0 on Saturday. Here are a few highlights — people who focused on listening to patients and caregivers: “To learn listen well to impressions voiced by patients first” – Sally Okun of PatientsLikeMe closed her presentation with this poem.

Filed Under: patient networks, pts as teachers Tagged With: diabetes, hospice, medicine 2.0, patientslikeme

President’s Cancer Panel: Input, Please–Susannah Fox

November 30, 2010 By Susannah Fox 36 Comments

What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of the President’s Cancer Panel, “The Future of Cancer Research: Accelerating Scientific Innovation” (PDF of the agenda).

Filed Under: policy issues, pts as teachers, research issues Tagged With: ACOR, Andrew Schorr, Bill Claxton, cancer, Center For Studying Health System Change, Chordoma, Erin McCartney, hints, Institute Of Medicine, national cancer institute, Palo Alto Medical Foundation, patientslikeme, Pew Internet

The presence of patients changes public conversations about health care

October 4, 2010 By Susannah Fox 1 Comment

I’m attending a LOT of conferences this fall and over & over I am seeing the power of having patients in the room. e-Patient Connections was a wonderful and well-documented example (in blogs, on Twitter, plus the large in-person audience) as will be Health 2.0 San Francisco. But the one that turned my head around […]

Filed Under: pts as teachers Tagged With: #epatcon, #health2con, Connected, health 2.0, Legacy, Nicholas Christakis, patients included, Schroeder Institute, smoking cessation

What can surgeons learn from patients?

September 22, 2010 By Susannah Fox 29 Comments

I’m going to be on a panel at the American College of Surgeons 96th Annual Clinical Congress on October 5 in Washington, DC. The session title is pretty provocative: To Tweet or Become Extinct?: Why Surgeons Need to Understand Social Networking and my part of it uses the “e” word that I recently tried to […]

Filed Under: pts as teachers Tagged With: Alice Tolbert Coombs, American College of Surgeons, Catherine deVries, Howard Luks, KevinMD, participatory medicine, Social Networking, surgery

May Old Acquaintance Be Recalled–Susannah Fox

December 22, 2007 By Susannah Fox Leave a Comment

Since it is the season for “Auld Lang Syne” and reconnecting with old acquaintances is an internet pastime, I wanted to link to a wonderful article by Wayne Cooke, a stage IV colon cancer survivor and true e-patient. I haven’t seen him in many years, but because of online storytelling, I am up to date […]

Filed Under: pts as teachers Tagged With: colon cancer, e-patient

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