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Susannah Fox

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policy issues

President’s Cancer Panel: Input, Please–Susannah Fox

November 30, 2010 By Susannah Fox 36 Comments

What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of the President’s Cancer Panel, “The Future of Cancer Research: Accelerating Scientific Innovation” (PDF of the agenda).

Filed Under: policy issues, pts as teachers, research issues Tagged With: ACOR, Andrew Schorr, Bill Claxton, cancer, Center For Studying Health System Change, Chordoma, Erin McCartney, hints, Institute Of Medicine, national cancer institute, Palo Alto Medical Foundation, patientslikeme, Pew Internet

Health 2.0 DC: Passion and Execution at Scale

June 8, 2010 By Susannah Fox 7 Comments

Exterior of the National Museum of American History in Washington, DC, with the Washington Monument in the background

I think conferences are deeply affected by the spirit of their host city.  San Francisco has its hackers and dreamers, Boston has its entrepreneurs and ivy, Paris has its pomp and worldliness. At Health 2.0 DC yesterday, my city showed that it has passion and execution — at scale. Leave it to others to point […]

Filed Under: patient networks, policy issues Tagged With: Chordoma, Data Transparency, David Hale, Gov 2.0, health 2.0, Indu Subaiya, Institute Of Medicine, John Mendelsohn, Josh Sommer, Ken Buetow, Patrick Soon-Shiong, pillbox, Tim O'Reilly, Todd Park

Gov 2.0 Expo: Health Geek Guide

May 24, 2010 By Susannah Fox 6 Comments

The cross-disciplinary smorgasbord that is Gov 2.0 Expo will be held this week in DC.  The agenda is packed with nerdy temptations (danah boyd! Anil Dash! Tim Berners-Lee!) but here are my can’t-miss sessions.

Filed Under: found on the net, hc's problem list, policy issues Tagged With: Crisis Commons, David Hale, Fda, Gov 2.0, Hhs, Jay Parkinson, National Library of Medicine, pillbox, Regina Holliday, Ted Eytan, Todd Park

A New Conversation About Health Privacy: Who’s In?

May 21, 2010 By Susannah Fox 29 Comments

Light bulbs in the night sky - a photo by Ted Eytan

Facebook has sparked a new debate about privacy and I think it’s time to bring it to health care. What does it mean when millions of people flock to share/overshare information, even as Facebook’s default privacy settings have slowly become openness settings (but the company maintains radio silence)? Pew Internet research shows that a sizeable […]

Filed Under: health data, patient networks, policy issues Tagged With: Facebook, Hipaa, patientslikeme, Pew Internet, privacy

The Power of Data and the Power of One

May 5, 2010 By Susannah Fox 13 Comments

I am struck, once again, by the power of data and the power of one. Carlos Rizo, Chief Imagineer of the Health Strategy Innovation Cell, posted this very intriguing tweet on May 2: The power of open data: To find problems in complicated environments, and possibly even to prevent them from emerging. Clicking through, I […]

Filed Under: policy issues, trends & principles Tagged With: Carlos Rizo, Gov 2.0, health 2.0, open data, Personal Democracy Forum, pew internet project, Regina Holliday, Ted Eytan

Health Geek Radio: Adam Bosworth’s Straight Talk Express

May 4, 2010 By Susannah Fox Leave a Comment

Adam Bosworth of Keas delivered quite a lecture yesterday at the Alliance for Healthcare Foundation. He talks about how Americans don’t really like data (but they need it), why “frugal innovation” is the best path for start-ups, how e-Patient Dave shook up the EHR world, why health privacy legislation would kill patient-driven research, and why […]

Filed Under: health data, medical records, policy issues Tagged With: Adam Bosworth, E-Patient Dave, EHR, Google Health, Health Data, Health Privacy, Keas

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