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Susannah Fox

I help people navigate health and technology.

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patient networks

Public Q&A: How to support an introvert in an increasingly connected world?

November 13, 2014 By Susannah Fox 31 Comments

All signs point to a social revolution in health. As I’ve put it, the internet gives us access not only to information, but also to each other. Crucial advice can come from a just-in-time someone-like-you as well as from a clinician. So what happens to people who are shy or introverted? If sharing and learning […]

Filed Under: e-pts resources, end of life, patient networks, peer-to-peer health care, public Q&A

Share the glow

September 10, 2014 By Susannah Fox 6 Comments

Stanford Medicine X: Sunday morning panel

Conference tweets are a little like brunch pics on social media. Sometimes I want to reach out and say, “Shhh, it’s OK. I’m so happy that you’re happy with your eggs, but you don’t need to show them to me.” Then again, sometimes you see a pic that makes your mouth water and you think, […]

Filed Under: patient networks, positive patterns, social media Tagged With: #medxsm, Colleen Young, Meredith Gould, Pamela Ressler, Stanford Medicine X

“One person’s TMI is another person’s need-to-know.”

August 25, 2014 By Susannah Fox 15 Comments

too much information by mkorsakov on Flickr

– Meredith Gould, aptly summarizing a key discussion point for our upcoming panel, “Communicating the experience of illness in the digital age.” (TMI stands for “too much information.”) We are flipping the panel, posting ideas and sparking conversations in advance so that when we arrive at Stanford Medicine X, the on-stage event will be one more […]

Filed Under: end of life, patient networks, peer-to-peer health care Tagged With: #medxsm, Colleen Young, flip teaching, Meredith Gould, Pamela Ressler, peer-to-peer healthcare, Stanford Medicine X

How did we get here? And where are we going?

July 15, 2014 By Susannah Fox 17 Comments

The Vasa, which sank on its maiden voyage in 1628

Video of my talk in Sweden is now online (skip to minute 7 unless you speak Swedish): It’s a comprehensive summary of my research so far, as well as an argument for listening to patients and caregivers as we move forward into the future. I opened with an example that was inspired by a visit […]

Filed Under: participatory research, patient networks, peer-to-peer health care, trends & principles Tagged With: C3N Project, cystic fibrosis, patientslikeme, peer-to-peer healthcare, Pew Internet, Pew Research Center, scurvy, Sweden, video

Health Care Hackers

June 25, 2014 By Susannah Fox Leave a Comment

Destination DIY is an independently-produced public radio show and podcast featuring creative solutions to big problems. Sarah Yahm did a beautiful job producing the latest show and I was honored to be part of it: https://soundcloud.com/destinationdiy/health-care-hackers A few footnotes: I name PatientsLikeMe as an example of an organization that helps people who want to help […]

Filed Under: patient networks, peer-to-peer health care

The internet spins both ways

June 18, 2014 By Susannah Fox 2 Comments

Did you know some doctors once had a hand signal to warn their colleagues about internet-using patients? I talk about this and other health care history, plus a bit about the possible future (including some market opportunities), in an interview with Alex Howard: One study I cite in this segment of our conversation centers on […]

Filed Under: patient networks, peer-to-peer health care, social media, trends & principles Tagged With: Alex Howard, Health Datapalooza, peer-to-peer healthcare, self-tracking, Tracking for Health

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