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Susannah Fox

I help people navigate health and technology.

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key people

Seekers go out on the hunt

May 19, 2022 By Susannah Fox 2 Comments

As I’ve shared in previous posts, I’m writing a book for MIT Press about the key role that peer health advice plays at every level of our health care system. The people I’m describing in my book do not wait to be invited to create opportunities for positive change. They seize opportunities to take action. They reject […]

Filed Under: key people, Seekers Tagged With: MIT Press, peer-to-peer healthcare, Rebel Health, Seekers

Too legit to quit

April 18, 2022 By Susannah Fox 17 Comments

Sunflowers with a bee

Sara Riggare, PhD, an expert in patient-led research and personal science, tweeted this animated GIF depicting the common process in starting personal science, which is based on Anne Wright’s work: Andrea Downing was among those who replied, writing: “My feedback: We’ve been saying for years what you outline here. The question is: how do we […]

Filed Under: health data, key people, peer-to-peer health care, research issues Tagged With: Andrea Downing, Anne Wright, Dana Lewis, Gary Wolf, Long Covid, personal science, Quantified Self, Sara Riggare, Unrest

What can we do by Tuesday?

October 20, 2021 By Susannah Fox 3 Comments

Close up picture of a dandelion

If you have spent time learning about health care improvement, you may have heard someone ask, “What can we do by Tuesday?” It’s an urgent question that asks you to immediately apply an abstract principle to your daily practice. I had heard it repeated many times over the years, without attribution, and I was curious […]

Filed Under: key people, trends & principles Tagged With: Don Berwick, Institute for Healthcare Improvement, Kedar Mate, Mike Evans

Should peer health community moderators get paid?

September 2, 2021 By Susannah Fox 29 Comments

Sandhill cranes taking flight at sunrise

Evidence is piling up in favor of peer health communities. The question is: How do we sustain them for the long-term? Here are 3 studies (of many) about the benefits of peer-to-peer health advice: A survey of the #bcsm community found that participation lowered people’s anxiety and increased their overall knowledge of breast cancer. A survey of […]

Filed Under: key people, patient networks, peer-to-peer health care Tagged With: #bcsm, breast cancer, CGM in the Cloud, Deanna Attai, diabetes, epilepsy, patientslikeme

The Data Puzzle of Our Time

February 16, 2021 By Susannah Fox 4 Comments

Gloved hands administering a shot to an arm

When the pandemic hit, we needed both grassroots and industrial-strength data platforms to effectively respond to the crisis. I have written about scrappy, patient-led data innovation. Today I want to share a broader view, thanks to a conversation I recently had with Tim Paydos, Vice President & General Manager of IBM Government. (I’m proud to disclose […]

Filed Under: health data, key people Tagged With: COVID19, IBM

HealthChangers: Mark Ganz

December 16, 2020 By Susannah Fox 6 Comments

Ten bowling pins lined up

I learn from every conversation I have with Cambia’s outgoing CEO, Mark Ganz — lucky for everyone, we recorded this latest one! Here’s a quote I loved: “A wise person once told me that the way to make progress in some ways is to think of a bowling analogy. You don’t try to knock 10 pins down […]

Filed Under: key people, reforming hc, trends & principles Tagged With: Cambia Health Solutions, Mark Ganz

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  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12
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