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Susannah Fox

I help people navigate health and technology.

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end of life

“What drugs is mom on?”

November 19, 2013 By Susannah Fox 1 Comment

Here are quotes from two excellent essays about being an empowered caregiver. First, from Muriel Gillick, MD: In those care planning meetings in the nursing home, if they ask nothing else, family members should ask “what drugs is mom on?” And that should be followed by “why is she on them?” and “are they helping?” […]

Filed Under: end of life, shared decision making Tagged With: Anna Quindlen, caregivers, drugs, Muriel Gillick

Chicken soup for decision-makers

September 13, 2013 By Susannah Fox 2 Comments

Ceramic casserole with a shino glaze by Marcia Halperin

Half of all health searches in the U.S. are done on behalf of someone else. That’s been a core finding of the Pew Research Center’s health portfolio since 2000. We have called information the new chicken soup of the digital age, brought to the bedside by people who want to help. Now, in the social […]

Filed Under: end of life, hc's problem list, shared decision making Tagged With: hospice, palliative care, Pew Internet, Pew Research Center, rehab

“There are four kinds of people in this world…”

July 1, 2013 By Susannah Fox 2 Comments

Arrows connect Give and Take; a bracket shows that Care encompasses both.

“…those who have been caregivers, those who currently are caregivers, those who will be caregivers, and those who will need caregivers.” – Rosalyn Carter, quoted in a lovely post by Kathleen Hoffman: “Be Kind Whenever Possible…” I’m continuing to hear from people about the new caregivers report, via tweets, blog comments, and email. Thank you for […]

Filed Under: end of life, key people Tagged With: caregivers, Jessica Hagy

Love made visible

June 23, 2013 By Susannah Fox 31 Comments

Terra cotta soldiers, photograph by O. Louis Mazzatenta

As an anthropology major in college, I was required to take at least one course in archaeology. We studied burial mounds and earthworks (from afar, no digging) and it reminded me of Geology 101, when I learned how scientists spot patterns in the physical landscape. Geologists look for clues to the Earth’s past, and possible […]

Filed Under: demographics, end of life Tagged With: california healthcare foundation, caregivers, Pew Internet, Pew Research Center

Beyond one more search, one more prayer

June 10, 2013 By Susannah Fox 3 Comments

Black and white image of two hands, clasped. One person is wearing a hospital ID bracelet.

I had lunch today with Mona Hanford, who shared her vision for helping people navigate to the end of life, based on her own experience as a caregiver for her husband. Our conversation led us to the observation that caregivers often feel like they have to keep fighting on behalf of their loved one. If […]

Filed Under: end of life Tagged With: caregivers, end of life

Caregivers, please share your stories

May 28, 2013 By Susannah Fox 16 Comments

The Pew Research Center will release a new report about caregivers in June. As we prepare, I’m looking for stories to share with reporters so they can better understand the context for our data. If you have experience caring for a family member, a friend, or a neighbor, either now or in the past, please […]

Filed Under: end of life, hc's problem list, key people, peer-to-peer health care Tagged With: AARP, Alzheimers, caregivers, National Family Caregivers Association

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