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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

The Power of Rare Disease Patients

February 25, 2012 By Susannah Fox 2 Comments

I’m honored to post this essay by Wendy White, Founder & President of Siren Interactive: Thanks to the Pew Internet Project, we have a lot of data about ePatients. These empowered, engaged and educated patients (and families) are helping to bring about a transformation of healthcare in this country. Pew’s Susannah Fox has named them […]

Filed Under: e-pts resources

Health, Technology, and Communities of Color

February 16, 2012 By Susannah Fox 20 Comments

Serendipity brought me two opportunities this week to present Pew Internet’s data on communities of color and young people, particularly as it relates to health. On Wednesday I was a guest of the Federal HIV/AIDS Web Council and on Thursday I spoke at a meeting convened by CommonHealth ACTION. I’ll share some insights I picked […]

Filed Under: positive patterns Tagged With: Black Lives Matter, HIV/AIDS, Mobile Health, Natalie Burke, Pew Internet

What’s your health care dream?

February 3, 2012 By Susannah Fox 11 Comments

Regina Holliday's painting for the Families USA conference

Note: This is two posts in one — scroll down to read Regina Holliday’s point of view. From Susannah Fox: For me, Twitter is a free-wheeling space where people dance with ideas. Anyone is welcome to jump into the spotlight and take a twirl. That’s how I see hashtags – spotlights on circles of people, […]

Filed Under: hc's problem list, reforming hc, social media Tagged With: #whatifhc, C3N Project, Regina Holliday, The Walking Gallery, Twitter

The Rise of the e-Patient

January 19, 2012 By Susannah Fox 10 Comments

Lee Rainie, director of the Pew Internet Project,  presented this wonderful overview of the Project’s health findings at Providence St. Joseph Medical Center in Burbank, CA, on January 12. The Rise of the e-Patient View more presentations from Pew Research Center’s Internet & American Life Project Another summary of the Project’s health research is the […]

Filed Under: demographics, positive patterns, pt/doc co-care

For some people, it’s still 1994

December 8, 2011 By Susannah Fox 18 Comments

Here’s a question which inspired me today, received via email from Christie Silbajoris,  director of NC Health Info: My library is rethinking its provision of services to the public.  We’ve got a history of going beyond what the average academic health sciences library provides in this area but in this age of budget cuts (and […]

Filed Under: general, hc's problem list, policy issues, public Q&A, shared decision making

World AIDS Day

December 1, 2011 By Susannah Fox 3 Comments

Mark Senak’s post, “World AIDS Day: The Past Cannot Be the Future,” inspired me to write an epic comment about different perspectives on illness and care delivery, so I adapted and expanded it to share here: I recently read Susan Sontag‘s two essays, “Illness as Metaphor” (about TB & cancer, published in 1977) and “AIDS […]

Filed Under: ethics, policy issues

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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