Stephen Wolfram’s essay, The Personal Analytics of My Life, begins: “One day I’m sure everyone will routinely collect all sorts of data about themselves.” A Pew Internet survey suggests we have a long way to go: a September 2010 survey found that 27% of internet users age 18+ track their own health data online. There […]
The Power of Rare Disease Patients
I’m honored to post this essay by Wendy White, Founder & President of Siren Interactive: Thanks to the Pew Internet Project, we have a lot of data about ePatients. These empowered, engaged and educated patients (and families) are helping to bring about a transformation of healthcare in this country. Pew’s Susannah Fox has named them […]
Health, Technology, and Communities of Color
Serendipity brought me two opportunities this week to present Pew Internet’s data on communities of color and young people, particularly as it relates to health. On Wednesday I was a guest of the Federal HIV/AIDS Web Council and on Thursday I spoke at a meeting convened by CommonHealth ACTION. I’ll share some insights I picked […]
What’s your health care dream?
Note: This is two posts in one — scroll down to read Regina Holliday’s point of view. From Susannah Fox: For me, Twitter is a free-wheeling space where people dance with ideas. Anyone is welcome to jump into the spotlight and take a twirl. That’s how I see hashtags – spotlights on circles of people, […]
The Rise of the e-Patient
Lee Rainie, director of the Pew Internet Project, presented this wonderful overview of the Project’s health findings at Providence St. Joseph Medical Center in Burbank, CA, on January 12. The Rise of the e-Patient View more presentations from Pew Research Center’s Internet & American Life Project Another summary of the Project’s health research is the […]
For some people, it’s still 1994
Here’s a question which inspired me today, received via email from Christie Silbajoris, director of NC Health Info: My library is rethinking its provision of services to the public. We’ve got a history of going beyond what the average academic health sciences library provides in this area but in this age of budget cuts (and […]
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