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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Three Simple Rules–Susannah Fox

June 19, 2007 By Susannah Fox Leave a Comment

When in 2002 we came out with our bold new concept of “information therapy” I was sure that Tom would love the idea of doctors or health plans prescribing information to consumers. He didn’t. He was concerned that the prescribed information from clinicians would undermine the patient’s right or ability to search for information from other self-helpers…

…I think I am there—but then Tom might still not agree—for I still think that the self-help world will work better when the patient is also being prescribed information as a part of the process of care.

Filed Under: pt/doc co-care Tagged With: doctors, e-patients, Healthwise, information therapy, rare diseases, self-care, self-help

Daily Kaizen–Susannah Fox

June 14, 2007 By Susannah Fox Leave a Comment

I just rediscovered Daily Kaizen, a health care provider blog that maintains an e-patients perspective. I think Ted Eytan, one of the blog’s authors, lives in the future, so I’m always curious to see what he’s up to. – Susannah Fox

Filed Under: found on the net Tagged With: blog, future, GroupHealth Cooperative, patient perspective, Ted Eytan

Online Patient Groups

June 13, 2007 By Susannah Fox 10 Comments

Laura Landro’s column in the Wall Street Journal features a series of profiles of online patient groups like MPDinfo.org and ACOR.org, among others. Now seems like the right time to post some data that I’ve been holding back, waiting for the right opportunity to talk about it publicly.

Filed Under: patient networks Tagged With: ACOR, health, Landro, mpdinfo, patient groups, survey

Wikipedia as an e-patient source–Susannah Fox

June 5, 2007 By Susannah Fox 1 Comment

Read this quote and think about which industry is being admonished: “We cannot, however, continue to reject Wikipedia because we aren’t comfortable with the wiki process itself… To be quite frank, continually bad-mouthing Wikipedia to the very people who use it—successfully—makes us look a bit daft. It would be much more productive to teach [people] […]

Filed Under: pts as teachers Tagged With: librarians, parents, patients, students, teachers, Wikipedia

Health Search–Susannah Fox

May 23, 2007 By Susannah Fox Leave a Comment

Bill Tancer is the general manager of global research at Hitwise and writes a column for Time.com called “Science of Search.” His recent column on “Restless Leg, Mumps and Other Maladies” addressed the effect of media attention to certain conditions & diseases. The column is a neat summary of a pattern we had noticed: The […]

Filed Under: demographics Tagged With: breast, cancer, cervical, hitwise, lung, prostate, search, skin, time magazine

My Idea of Great: Health Data Geeks Convention–Susannah Fox

May 22, 2007 By Susannah Fox 1 Comment

I was lucky enough to be invited to a “Data Users Conference” sponsored by the Health Information National Trends Survey/National Cancer Institute, which really should have been called Health Data Geeks Unite! If you have a moment, I highly recommend browsing through some of the presentations, particularly the following: David Stinchcomb showed how isopleth maps […]

Filed Under: key people Tagged With: data, hints, national cancer institute, survey

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