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Susannah Fox

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Archives for October 2017

Why people participate in clinical trials: altruism and access

October 30, 2017 By Susannah Fox 3 Comments

Painting of a red landscape with people climbing a dark arrow toward the sky

I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes.  Rahlyn Gossen, in response to Peer-to-peer healthcare: Crazy, crazy, crazy, obvious (2011):  By far the biggest hurdle to clinical trials recruitment is awareness. The public is generally not aware and doctors are not informing […]

Filed Under: featured commenters Tagged With: altruism, Clinical Trial Data, Clinical Trials, EHR, Regina Holliday

Access to results that matter

October 26, 2017 By Susannah Fox 16 Comments

Painting of people climbing cell structures

The Patient-Centered Outcomes Research Institute (PCORI) will kick off their annual meeting on Tuesday, October 31. I will moderate the first panel, “Access to Results That Matter,” and, as I like to do, I’m starting the conversation early online. Here’s the session description: Traditional health research often does not provide the answers to patients’ questions […]

Filed Under: health data, participatory research, policy issues, research issues Tagged With: Ben Goldacre, Bishop Simon Gordon, David Lansky, Diane Padden, flip teaching, Freddie White-Johnson, PCORI, Regina Holliday, Sharon Terry, Stephanie Buxhoeveden

How health systems are like newspapers

October 23, 2017 By Susannah Fox 1 Comment

Press Room - Topeka Capital Journal - Marion Doss on Flickr

I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes.  Dave Chase, in response to Recognizing the value of data (2014): As a confessed congenital optimist, I’ll give my optimistic view of how positive developments are little-noticed, as they were with epic shifts that […]

Filed Under: featured commenters

Access to data = access to power

October 19, 2017 By Susannah Fox 17 Comments

Black Lives Matter sign

Data about your health and that of your community can empower you to make — or demand — changes. When there are gaps in the record or the data don’t exist, participatory data collection empowers people to contribute to the public conversation. Access to data is access to power. On November 17-19, 2017, Data for […]

Filed Under: health data, policy issues, trends & principles Tagged With: Adverse Childhood Experience, asthma, Black Lives Matter, Blue Button, FHIR, flip teaching, Health Data, health disparities

Under the right conditions, people will choose the path of information altruism

October 16, 2017 By Susannah Fox 20 Comments

I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. This comment was posted in 2011 and I’m featuring it now because it is an example of how we, as a health data community, have been — and need to continue — discussing a power […]

Filed Under: featured commenters, health data Tagged With: Health Data

Regina Holliday brings beauty and wonder to health care

October 12, 2017 By Susannah Fox 1 Comment

Painting of a woman and two children

If you’re a regular reader of my blog, you may have noticed that the new design requires a big “featured image” at the top of every post. It’s an interesting creative challenge to illustrate some of the themes I bring out — peer health advice, medical errors, health data… Luckily, Regina Holliday generously posts gorgeous […]

Filed Under: beauty and wonder, e-patient stories Tagged With: Regina Holliday, The Walking Gallery

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