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Susannah Fox

I help people navigate health and technology.

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Thank you, Susannah Fox (the other one, that is)

May 17, 2013 By Susannah Fox 2 Comments

Man with an umbrella walks toward a wedding tent in pouring rain

One year ago this week I ported over five years’ worth of posts from e-patients.net and launched this blog. But I have never shared the story behind the susannahfox.com domain name (and there is a story). Here it is:

Filed Under: key people

Public Q&A: How should a clinician measure patients’ use of online health resources?

May 13, 2013 By Susannah Fox Leave a Comment

Here’s a question I received recently from a clinician I met at a conference. He had expressed interest in the Pew Research Center’s health and technology surveys and was now following up: We are in the process of revising our patient forms and this may be a good time to add 1-2 questions that might […]

Filed Under: demographics, public Q&A, research issues

Mother’s Day

May 12, 2013 By Susannah Fox 13 Comments

I filled out a form recently which asked: What motivates you to innovate? Without hesitation I typed in “Motherhood.” I had no idea that having kids would rewire my brain so fundamentally, but it did. A few posts to contemplate on Mother’s Day… Mothering Cal: What I learned from parenting a terminally ill child, by […]

Filed Under: end of life, maternity Tagged With: moms

One voice, many inflections: HIV clinical trial communications

May 10, 2013 By Susannah Fox 14 Comments

Demographics of Twitter, Facebook, Pinterest, Instagram, Tumblr

I’m re-sexifying the top of this post since it’s so long and I want people to get these key take-aways (read on for details on each one): Expect clinical trial participants to share news with their networks. Plan accordingly. Make your information attractive and share-able where people already are, on Facebook, Tumblr, Pinterest, etc. Find […]

Filed Under: participatory research, research issues, trends & principles Tagged With: AIDS.gov, Clinical Trials, HIV/AIDS, participatory research

Big data, red flags, better health?

May 8, 2013 By Susannah Fox 10 Comments

A new interview with Stephen Wolfram on “why he thinks your life should be measured, analyzed, and improved” popped up on the same day that American Medical News ran a story advising clinicians to look for “red flags” like unfilled prescriptions and delayed screenings since it may mean the patient has lost their job or […]

Filed Under: ethics, medical records, trends & principles Tagged With: #whatifhc, big data, Quantified Self, Stephen Wolfram

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Recent Comments

  • Susannah Fox on Patient Input on Clinical Trials: “Great question, thank you! My impression is that our best bet is to make it appeal to study sponsors as…” Oct 17, 10:26
  • Dave deBronkart on Patient Input on Clinical Trials: “I don’t have anything to add but I have a suggestion for the problem that trialists don’t *know* about the…” Oct 16, 14:01
  • Rufus on Hack needed: Tiny pills, trembling hands: “How about using a small piece of store bought bread? Slices of bread can be “smooshed,” and a small piece…” Oct 5, 23:48

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