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Susannah Fox

I help people navigate health and technology.

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Imagining better outcomes for T1D with #MakeHealth

December 18, 2014 By Susannah Fox 8 Comments

Glucose meter displaying the number 85

This post originally appeared on Diabetes Mine. Forty-five makers, thinkers, designers and doers gathered in Cincinnati for a two-day meeting to kick off “Phase Zero” of a new initiative to imagine a new system of care for people living with Type 1 diabetes (T1D). The best way I can describe the group is that everyone […]

Filed Under: hc's problem list, net-friendly docs, pt/doc co-care, pts as teachers Tagged With: #makehealth, C3N Project, diabetes, diabetesmine, Joyce Lee, T1D Exchange, Type 1 Diabetes

Public Q&A: How do you know when you are heading in the right – or wrong – direction?

December 12, 2014 By Susannah Fox 16 Comments

Here’s a question I received recently: What kinds of indicators tell you if you are going in the right — or wrong — direction in your work? I decided to answer it here, as a public Q&A, because it merits crowd-sourcing.

Filed Under: positive patterns, public Q&A Tagged With: failure, Hunter Gatewood, Mike Evans, Quality Improvement

Public Q&A: Alternatives to Facebook and YouTube?

December 4, 2014 By Susannah Fox 5 Comments

Kathleen Bogart, PhD, studies how people communicate across disability. I met her through the work I’ve done with the Moebius Syndrome Foundation (and I wrote about her research in 2012: Facial Paralysis, Not Personality Paralysis). She emailed me with a very intriguing question, so I’m sharing it here for discussion: Moebius Syndrome is a highly […]

Filed Under: public Q&A Tagged With: Facebook, Kathleen Bogart, Moebius Syndrome, Viddler, Vimeo, Youtube

Giving Tuesday: The Walking Gallery Center for Arts and Healing

December 1, 2014 By Susannah Fox 4 Comments

On this Giving Tuesday, consider donating money to support Regina Holliday’s latest project: The Walking Gallery Center for Arts and Healing.

Filed Under: beauty and wonder Tagged With: Regina Holliday, The Walking Gallery

We are all fellow travelers (even if we don’t look sick)

November 22, 2014 By Susannah Fox 14 Comments

Crowd at airport

Inspired by a call for essays about e-patient travel stories:  There is an unspoken code at airport gates. Don’t touch me. Don’t touch my stuff. Don’t step in front of me unless you have a heck of a good reason, especially if I got here before you did. We mark out our territory and imperceptibly […]

Filed Under: others' e-patient stories Tagged With: mitochondrial disease

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Recent Comments

  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07
  • Jill H. on Case study: Trevor’s disease: “Hello Carrie, I am curious how your son is doing after the surgery? Were you able to fix the locked…” May 28, 19:07
  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10

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