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Susannah Fox

I help people navigate health and technology.

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Access to data = access to power

October 19, 2017 By Susannah Fox 17 Comments

Black Lives Matter sign

Data about your health and that of your community can empower you to make — or demand — changes. When there are gaps in the record or the data don’t exist, participatory data collection empowers people to contribute to the public conversation. Access to data is access to power. On November 17-19, 2017, Data for […]

Filed Under: health data, policy issues, trends & principles Tagged With: Adverse Childhood Experience, asthma, Black Lives Matter, Blue Button, FHIR, flip teaching, Health Data, health disparities

Under the right conditions, people will choose the path of information altruism

October 16, 2017 By Susannah Fox 20 Comments

I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. This comment was posted in 2011 and I’m featuring it now because it is an example of how we, as a health data community, have been — and need to continue — discussing a power […]

Filed Under: featured commenters, health data Tagged With: Health Data

Regina Holliday brings beauty and wonder to health care

October 12, 2017 By Susannah Fox 1 Comment

Painting of a woman and two children

If you’re a regular reader of my blog, you may have noticed that the new design requires a big “featured image” at the top of every post. It’s an interesting creative challenge to illustrate some of the themes I bring out — peer health advice, medical errors, health data… Luckily, Regina Holliday generously posts gorgeous […]

Filed Under: beauty and wonder, e-patient stories Tagged With: Regina Holliday, The Walking Gallery

“Well, your mother’s had a long life …”

October 9, 2017 By Susannah Fox 5 Comments

I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Casey Quinlan, in response to “As She Lay Dying” – a son calls on the health system to involve patients and families in improving safety I’ll apologize in advance for the screaming screed that is […]

Filed Under: featured commenters Tagged With: caregivers, Family Caregivers, medical errors

Creating space for innovation

October 8, 2017 By Susannah Fox 3 Comments

Stanford Medicine X stage

It seems like forever-ago that I delivered this keynote at Stanford Medicine X. Innovators are facing even more significant challenges than I could have imagined back in September 2016. And yet I still believe we live in a time of abundant opportunity to connect with people who want to work toward a participatory, innovative future […]

Filed Under: peer-to-peer health care, policy issues Tagged With: home health care hacks, maker movement, peer-to-peer healthcare, Stanford Medicine X

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Recent Comments

  • Susannah Fox on Caregiver Survival Guide: “Thank you, Nina! When my loved one and I were forging our care relationship one of my stipulations was that…” Oct 26, 16:28
  • Nina Mayes on Caregiver Survival Guide: “To my fellow caregivers: Give yourself permission to ask for help. Give yourself permission to receive help. Be relentless about…” Oct 26, 15:36
  • Alex on Wow! How? Psychedelic Outlaws: “This is such a thoughtful article — I especially appreciated the way you connected the science with real-world experiences. In…” Oct 26, 01:32

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