The National Institutes of Health hosted a Wikipedia Academy today to train scientists, communications staff, and other NIH staffers in how to contribute to what has become a top source for health information in the U.S. (For more details, please see the NIH press release, a Wikipedia project page, and a Wikimedia Blog post.) The […]
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E-patients in U.S. News–Susannah Fox
U.S. News & World Report’s Best Hospitals guide features 3 articles of particular interest to e-patients: Getting Medical Advice on the Web from Other Patients Would You Share Your Health Information Online? Great Medicine Needs Committed Patients
Participatory Medicine at PdF09: Can we get a do-over?
The poli-tech tribe gathered in New York last week for the Personal Democracy Forum and, as Craig Newmark put it, welcomed “our new nerd overlords.” Esther Dyson, Jamie Heywood, Rep. Jerry Nadler (D-NY), and I were asked to take on a breakout panel entitled, “From Participatory Politics to Participatory Medicine: The Coming Revolution in Health […]
The Social Life of Health Information–Susannah Fox
The Pew Internet/California HealthCare Foundation report, The Social Life of Health Information, is packed with new findings from a survey of 2,253 adults, including 502 cell-phone interviews, conducted in either English or Spanish. We spent a bundle of money on making this a random sample of the U.S. population, but guess who got a call […]
Open Access to Publicly-Funded Research: Let Them Eat Cake?
Update on 12/3/14: Nature re-ignited the access debate when they announced that they will make all their articles “free to view” (but if you read the fine print: it makes the “dark social” practice of #icanhazpdf and other access work-arounds illegal). To catch up, see my Storify: Five-alarm fire in Open Access Land. Marketplace aired […]
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