I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Emily Kramer-Golinkoff, in response to “A field guide to The Diagnosis Difference” (2013): My advice to a person or parent of a child newly diagnosed with Cystic Fibrosis would be: “I can only imagine […]
Stanford Medicine X
Creating space for innovation
It seems like forever-ago that I delivered this keynote at Stanford Medicine X. Innovators are facing even more significant challenges than I could have imagined back in September 2016. And yet I still believe we live in a time of abundant opportunity to connect with people who want to work toward a participatory, innovative future […]
Invent Health
As winter sets in here in DC, I’m warming up with memories of September’s Stanford Medicine X conference. I loved putting together a keynote that highlighted how the maker movement intersects with the e-patient movement — and how private sector and government leaders can benefit. This intersection, and the lessons we are learning from it, are the latest examples […]
How my food-allergy community “flips the clinic”
May 10-16, 2015, is Food Allergy Awareness Week. I am grateful to the women (and a few men) who help me care for my child with food allergies. I’ve never met most of them in person, but they are there for me, 24×7, answering questions and sharing resources.
Speak up: The network is our superpower
I have a new post up on Medium, illustrated with this gem from a 2012 post: An excerpt: We can’t let misinformation—or worse—go by without comment. I think it’s time for more people to speak up in health care. More pediatricians should express their measles outrage. More people should chronicle the reality of living with chronic conditions.
What health care can learn from Mike Mulligan and his steam shovel
Google is upgrading health search…again. In 2010, I was inspired by Animal Farm to write that Google saw some health sites as more equal than others. This time I turned to Mike Mulligan and his Steam Shovel, by Virginia Lee Burton.
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