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Susannah Fox

I help people navigate health and technology.

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Social Impact Of The Internet

Health 2.0 Europe: A Moveable Feast–Susannah Fox

April 19, 2010 By Susannah Fox 13 Comments

Ernest Hemingway wrote that Paris is a moveable feast, not fixed in time or place. I think that describes great gatherings of any kind, including great conferences, which begin before the first speaker takes the stage and don’t end simply because the participants have left the building. Health 2.0 Europe began, for me, in February, […]

Filed Under: demographics, trends & principles Tagged With: ACOR, california healthcare foundation, cancer, Chronic Conditions, chronic disease, diabetes, health 2.0, Heart Conditions, High Blood Pressure, Internet Users, Lung Conditions, participatory medicine, patientslikeme, pew internet project, Pew Research Center, Sharing Strength, Social Impact Of The Internet

Tell the FDA the whole story, please

November 8, 2009 By Susannah Fox 26 Comments

Exterior of the National Museum of American History in Washington, DC, with the Washington Monument in the background

I scan menus for keywords (fig, parsnips, salmon…) and it turns out I scan Twitter the same way, looking for anyone who is talking about my favorite topics (data, consumers, information quality…) So when I saw Jonathan Richman‘s tweet the other night, I couldn’t resist it: Anyone ever seen data on the overall accuracy of […]

Filed Under: policy issues Tagged With: Amia, Ammo, Ammunition, Amp, Aspx, Boundaries, Consumer Information, Fingers, health care, health information, Health Research, Health Search, Health Seekers, Health Websites, Healthypeople, Hhs, Information Quality, Information Retrieval, Internet Data, Internet Health Report, Jonathan, Jonathan Richman, Medical Advice, Medical Information, Medical Library Association, Menus, Mla, Mole, Pew Internet, Pew Research Center, Quality Game, Quality Indicators, Research Question, Respondents, Salmon, Short Answer, Social Impact Of The Internet, Thre, Three Quarters, Timeliness, Vital Decisions, Watchdog, Www Health

Health IT Policy: E-patients want access

September 17, 2009 By Susannah Fox 10 Comments

What would you say to policymakers who are discussing the implementation of a national health information infrastructure? Here’s what I’d say: E-patients want access to tools and information.  Many will find what they need, many will not. You can help.

Filed Under: health data, medical records, policy issues, reforming hc Tagged With: American Adults, American Association Of Retired Persons, Choice Control, Data Stewardship, Doct, Early Days Of The Internet, Health Care Decisions, Health Data, Health Information Infrastructure, Health Information Technology, Internet Adoption, Internet Health Care, National Coordinator, National Health Information, New Tools, Patient Choice, Patient Privacy, Patient Privacy Rights, pew internet project, Regenstrief Institute, Social Impact Of The Internet

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12
  • Anonymousity on Rare Disease in the NYT: “I was captivated by Amanda Hess’s story. I too dove right in in reading all the way through the article…” Apr 25, 09:24
  • Susannah Fox on Rare Disease in the NYT: “Thank you, Dave! Yes, I’ve been a fan of Hess’s writing for a long time and now, well, I’m a…” Apr 23, 22:00

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