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Susannah Fox

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Pew Research Center

2012 Health Survey Data

February 11, 2013 By Susannah Fox Leave a Comment

Calculator by josef stuefer on Flickr

Thanks to multiple requests, and our hope to be useful and responsive to our audience, the Pew Research Center posted a preliminary version of the September 2012 health survey data. Please note that this version includes the topline, questionnaire, CSV file, and SPSS file. Here’s an explanation of our data resources if you have questions about […]

Filed Under: research issues Tagged With: california healthcare foundation, Pew Internet, Pew Research Center

Mobile, Social Health at the National Library of Medicine–Susannah Fox

July 13, 2010 By Susannah Fox 18 Comments

Update: The NLM released new widgets on July 14, along with a redesigned MedlinePlus site. (Read @eagledawg‘s take on these new tools, as well as her response to this post.) Speaking to the senior staff of the National Library of Medicine last week was like going before the best kind of murder board. Picture it: […]

Filed Under: demographics, trends & principles Tagged With: demographics, Forrester Research, mobile, National Library of Medicine, patient activation, Pew Internet, Pew Research Center

The Decision Tree: How Better Health Can Scale

May 1, 2010 By Susannah Fox 3 Comments

“The internet was created to connect people and groups. The first step is to share stories. The next step is to share quantitative observations.” “Health care has been locked up in regulatory amber. HIPAA was passed in 1996, almost perfectly timed to cut off health care from the internet. But there is a loophole: to […]

Filed Under: health data, patient networks, policy issues, positive patterns Tagged With: 23andme, chronic disease, CureTogether, Decision Tree, digital divide, Genetics, getupandmove, Health Data, Hipaa, patientslikeme, Pew Research Center, susannah fox, Thomas Goetz

Health 2.0 Europe: A Moveable Feast–Susannah Fox

April 19, 2010 By Susannah Fox 13 Comments

Ernest Hemingway wrote that Paris is a moveable feast, not fixed in time or place. I think that describes great gatherings of any kind, including great conferences, which begin before the first speaker takes the stage and don’t end simply because the participants have left the building. Health 2.0 Europe began, for me, in February, […]

Filed Under: demographics, trends & principles Tagged With: ACOR, california healthcare foundation, cancer, Chronic Conditions, chronic disease, diabetes, health 2.0, Heart Conditions, High Blood Pressure, Internet Users, Lung Conditions, participatory medicine, patientslikeme, pew internet project, Pew Research Center, Sharing Strength, Social Impact Of The Internet

Chronic Disease in Data and Narrative–Susannah Fox

March 24, 2010 By Susannah Fox 60 Comments

For the past 5 months I have been immersed in data and narrative about chronic disease. The result, “Chronic Disease and the Internet,” is a report sponsored by the Pew Internet Project and the California HealthCare Foundation. We find that living with a heart condition, lung condition, high blood pressure, diabetes, and/or cancer has an […]

Filed Under: patient networks, understanding statistics Tagged With: california healthcare foundation, chronic disease, Pew Internet, Pew Research Center

Designing for Better Health

March 3, 2010 By Susannah Fox Leave a Comment

This is a banner week for people who think good design contributes to better health. On Monday, DiabetesMine and the California HealthCare Foundation launched the 2010 DiabetesMine Design Challenge. Last year the contest garnered more than 150 entries and awarded a grand prize, a “most creative” prize, and a kids’ category prize. I can’t wait […]

Filed Under: positive patterns Tagged With: Better Health, california healthcare foundation, Center Stage, Clinical Experience, Clinical Settings, Cognitive Decline, Demonstration Projects, design, Design Challenge, diabetes, diabetesmine, Health Care Initiatives, National Advisory Committee, National Program Director, observations of daily living, ODLs, Patti Brennan, Pew Research Center, Premature Infants, Project HealthDesign, Real People, Rise To The Challenge, Robert Wood Johnson Foundation, Stress Levels, Strict Policies, Taking Center Stage

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