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Susannah Fox

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participatory medicine

The Decision Tree: What to Expect When You’re Expecting a Long Life–Susannah Fox

February 14, 2010 By Susannah Fox 13 Comments

Warning: Do not read The Decision Tree unless you’re ready to make some kind of change in your life. Thomas Goetz catalogs the recent advances (and setbacks) in medicine & personal health, but also maps out the possibilities for how things could get better. He does this so convincingly that you can’t believe it’s not already taking […]

Filed Under: general Tagged With: Decision Tree, health 2.0, participatory medicine, Quantified Self

Participation Matters–Susannah Fox

October 2, 2009 By Susannah Fox 6 Comments

In politics and in health care, participation matters as much as access. The passion we saw in the political campaigns last year is matched by the passion we see when someone is trying to save a life, find a better treatment, or just manage the health of a loved one. What are you doing in […]

Filed Under: Why PM Tagged With: American Adults, Benchmark, chronic disease, Definition Of The Internet, digital divide, disability, health care, health information, Internet Connections, Internet User, Internet Users, Internet Wirelessly, Laptop Cell Phone, Medical Advice, Mobile Access, Mobile Adoption, Participation, participatory medicine, Passion, pew internet project, Political Campaigns, Voices

Participatory Medicine at PdF09: Can we get a do-over?

July 8, 2009 By Susannah Fox 12 Comments

Detail of a painting by Regina Holliday shows a hand holding a smartphone with the PatientsLikeMe symbol

The poli-tech tribe gathered in New York last week for the Personal Democracy Forum and, as Craig Newmark put it, welcomed “our new nerd overlords.” Esther Dyson, Jamie Heywood, Rep. Jerry Nadler (D-NY), and I were asked to take on a breakout panel entitled, “From Participatory Politics to Participatory Medicine: The Coming Revolution in Health […]

Filed Under: reforming hc, trends & principles Tagged With: Chris Schroeder, Craig Newmark, Disaggregation, Esther Dyson, Health Care Policy, Health Care Reform, Health Data Rights, Healthcentral, Jamie Heywood, Jerry Nadler, Openness, participatory medicine, Patient Data, patientslikeme, Personal Democracy Forum, pew internet project, susannah fox, Ted Eytan, Transparency

Mobile could be a game-changer – but only for those who get in the game.–Susannah Fox

April 23, 2009 By Susannah Fox 10 Comments

Original title: Health 2.0 meets Ix: Susannah Fox’s presentation Here are my prepared remarks for the “Navigating the New Health Care Delivery System” segment at the Health 2.0 meets Ix conference (with the lines I added to respond to other themes brought out during the conference in bold) “Is Health IT the answer? Only if […]

Filed Under: trends & principles Tagged With: california healthcare foundation, health 2.0, information therapy, mobile, participatory medicine, pew internet project

Participatory Democracy, Participatory Medicine–Susannah Fox

April 17, 2009 By Susannah Fox Leave a Comment

A sneak preview of my remarks at the “Health 2.0 meets Information Therapy” conference appears on the IxCenterBlog: Participatory Democracy, Participatory Medicine. A good discussion of the issues has already begun there and on The Health Care Blog.

Filed Under: found on the net Tagged With: Boston, information therapy, Participatory Democracy, participatory medicine

Doing Our Best to Blow Your Minds (Emerging Trends in Chronic Disease Care)

January 8, 2009 By Susannah Fox 6 Comments

Here is my third post in a series of look-backs at the November 2008 Chronic Disease Care conference in San Francisco. (OK, yes, it’s now January 2009 — I’m savoring the experience, not Twittering it!) The first post was about spreading improvement beyond early adopters, the second was devoted to patient voices, and this will […]

Filed Under: key people, net-friendly docs, patient networks, positive patterns Tagged With: diabetesmine, hellohealth, participatory medicine, patientslikeme

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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